Hi everyone. I've had 2 c-sections (6/02 and 10/98), and just last month I noticed a lump near my incision site. It felt about the size of a small grape, and it wasn't anything I ever noticed before. It didn't hurt or anything at that time, but I thought I should have it checked out anyway.
I went to my OB/GYN, for my annual exam and to have the lump looked at. Everything for the annual appeared normal, and I got a referral for an ultrasound regarding the lump. I was told not to worry, as it could be anything from a lipoma to a fibroid to a keloid. Ok, fine...
So, I had an ultrasound, and it showed a mass, approx. 2cmx2cm in the abdominal wall. The results went back to my dr, and I went for a followup visit. My dr. said that based on the radiology report (which stated that it was indeterminate), she hypothesized that it was probably either a suture granuloma or keloid, perhaps being aggravated by an injury, such as being kicked by a child or something (although, I could not recall receiving any type of injury, she insisted it could have easily happened while my daughter was in bed with us - the little stinker sleepwalks into our room almost every night).
I could either have this lump removed or just wait and see what happens with it. She said that there is no guarantee that if I had surgery to remove it, that my body wouldn't react to the surgery in the same way as it reacted to my c-sect, thus the same kind of lump happening again.
She definitely was leaning toward the wait and see avenue, but I didn't feel comfortable just leaving it. I know how I am, and I know it would bug me, not knowing what the darn sucker is, especiall since it's been almost 4 years since my c-section and all of the sudden NOW this thing pops up. She did say that because the mass isn't as superficial as she had thought, she'd probably want to send me to a plastic surgeon if it were to be removed, because it appeared to be deep in the fascia and may need more done to repair it, rather than just taking the thing out.
So, after pressing her for more direction (since she just kinda said it's all up to me, and I couldn't get a clear idea from her what she thought was the best thing to do), she mentioned that maybe we could biopsy it. Sounds good to me!!! At least then I can find out if it's anything abnormal that will truly need to be removed! So, my fine needle aspiration biopsy is scheduled for April 24th.
In the meantime, I thought I would do some research because my dr's words just didn't sit well with me. I stumbled upon some information about incisional endometriomas, and the more I read, the more I felt like I found what it could be. I didn't realize it, but symptoms I had been feeling for a while now could be attributed to this. One of the things I also addressed with my dr. was severe cramping that has been increasingly painful as time goes by with each period. I noticed that it felt like a cramp in my lower abdomen that radiated to my lower back and just stayed there. It got so bad that I actually stayed home from a birthday party and laid in bed all day last month because of it, and that is NOT normal for me. My periods have been getting more and more painful as time goes on.
My dr. put me on Seasonale, which I just started 3 days ago, thinking it would help with the dysmennorhea. That's all good, but now that I look back on my mentstrual history and add the fact that I did indeed notice that the lump itself was painful too during this last period... it all leads me to wonder if it could perhaps be this incisional endometrioma.
I want to thank everyone who has posted, because I feel very well informed after reading your posts and doing some more research. I will keep you posted as to what my biopsy comes up with. Maybe someone out there can relate to my experience, like I have with many of you all here. ↑
Hi Ladies! It's amazing how prevalent INCISIONAL ENDOMETRIOSIS is! I had one removed 1 year ago, along with some fascia, and had it repaired with mesh. Now, 1 year later I am still having problems. It seems I have MANY small pockets of endometriosis all over my abdomen, sides, pelvis, ribcage, even my back. The sites are painful, especially to the touch! Has anyone else had this problem? I am on hormones and pain killers now, and am waiting for a laparoscopy! Good Luck to Everyone...I know it can be really difficult! Rachel ↑
Rachel, sorry to hear about your pain. Were you noticing the pain in those other "pocket" areas at the same time you had your endo removed last year? I noticed that some ladies had a laparoscopy in addition to the surgery to remove the endo, just to make sure there wasn't any more lurking around, so I was wondering if you did too. Good luck with your lap... I hope they can get rid of it all and make you feel better. It IS sort of incredible, reading through these posts and hearing of all the issues people are having all because of their c-sections. I remember my dr. encouraging me to schedule a repeat c-section because at that time VBACs were considered more risky. Now I almost feel as if we are on the brink of something, and that as more of us come out of the woodwork with these problems, the risks of c-sections will become more known. All I can say is... I wish I knew then what I know now after researching it all. I think I would have definitely gone for the VBAC. Good luck to you! - Chris ↑
Hello everyone! It has been about 2 months since I had my incisional endometriosis removed and it was great until about 3 wks ago, at first I thought that I was just uncomfortable because the scar line was healing and pulling a little. Now I get pain so bad in my incision line when I am at work that I have to go sit down so that I dont fall over. Has anyone else had problems after their surgery? I am so bummed out because I thought that I was finally putting all of this behind me. ↑
Hi Robin! My name is Rachel and I wrote in just above you. Yes, I had surgery for removal of an endometrioma last April and I have MANY sore spots that I've just noticed in the last 3 months. They seem to be getting worse on a daily basis. I'm going for a laparoscopy in the next month or so...hopefully! Do you just have one sore area or a whole bunch? I can feel mine just under the skin some of them, they are even on my ribcage and back...how weird is that? ↑
Robin,
Oh my goodness! I can't belive your pain is back!! I am so so sorry. Ironic thing is my surgeon called me yesterday saying he was paged to my number which he was not......and he asked how I was doing etc...I told him fine great, I am a new person. Then last night I had some burning and the scar seems really hard. BUu it went away and this time I am truely hopeing that that was really scar tissue this time. I will pray for all you girls still going through this. ↑
Hi. I have had four csections and am pregnant now with my 5th child. I know all about c-section pain. I constantly have a pulling pain on my left lower side (along the scar line). Sometimes I want to cry if I move in an uncomfortable position.
I do know what it is though, it is adhesions. After my 2nd section, i was told I had a lot od scar tissue and when I had my 3rd c-section they did a lysis of adhesions which helped tremendously. I plan to request having this done with this baby to alleviate the pain. ↑
Hi everyone. I just got my results from my FNA biopsy, and sure enough - endometriosis was indicated in the mass cells. I just want to thank you all for sharing your experiences, because it really helped me in deciding what to do. I know my first message was VERY long (sorry about that), but I too just wanted to share my experience, in case others are going through the same thing. All I can say is that you know your body better than anyone else, so follow your insticts. Thanks again! And to those still in pain - I hope it gets better for you. ↑
I'm 2 days post surgery now (I posted originally in March) My surgeon said my endometrioses was worse than he thought it would be and had to take a lot more than expected. So now I am in a lot more pain. But this pain is going to go away and stay away instead of coming back each month. My doctor also told me that the endometrioses had "tumor like tendeses" growing like a tumor but NOT a tumor. Girls be prepared...I was 5 years since my last c-section, if you have pain see your doctor sooner than later. Best of luck to all of you
Hello! I just had my 2nd c-section 2 weeks ago and have noticed that the left side is still very puffy and swollen while the right side appears very flat and normal looking. I also have shooting pains from time to time. Of course, mine is still very new, so I'm hoping the swelling will eventually go down and the pain will disappear. I have started bleeding again, though, which is begining to concern me. ↑
I also have what you are describing. I have had six C-Sections and am pondering the next baby. I have a place of swelling on the left edge of my incision line. I was told after the second one it was a hernia. It has been there after every one. ↑
I had a c-section in 1997, soon after the c-section I noticed a pain in my lower back, usually in the morning, right before getting out of bed. Usually before my period. Since then I had CT scan, MRI, ultrasound, laparoscopy, x-rays,..named it .. I had it...thousand of dollars later, I am suffering from the most horrible pain in my lower back, left and right side of my pelvis. The pain had become so strong and frecuent that is driving me crazy. I have seen several doctors, and even been depressed becasue nobody seems to know the cause of my pain. I have trouble slepping because my pelvis is so tender that when I lie down and put pressure on my left or right side , I can feel the bone. Sometimes I get up in the middle of the night because I can't endure the pain. anything that has codeine works but I try to stay away froom addictive medication. I am glad to have found this site..at least I know now that I am not the only one...I just received the results from my last MRI (the one with the die and evreything, $6,000) and nothing!...according to the test there is nothing....but the pain is with me almost 24/7.. I know is not just on my head! ↑
I am so sorry for you all, I have had so many problems with c-section damage that I cringe and want to scream every time I hear someone say they WANT one, especially without any medical need. I have finally thrown in the towel and everything came out! I now do not have heavy horrible periods, no more agonizing cramps, no more embarrassing blood clots and messes. I take a little blue Estrogen pill every morning and for the first time since my last c I feel good again. Hopefully I don't get scar tissue and adhesions back from the hysterectomy too....Good luck everyone and to the one poster, yes, if we come out and let the Medical Associations know what REALLY happens after and because of c-sections they might change their minds about doing them for no reason. ↑
My cesareans aren't as recent as others here, but I'm having similar problems. I've had 2 cesarean births. My youngest was born 12 years ago. About 5 years ago I started having a burning sensation around the end of the left side of my scar that would begin around the last day of my period and would last until mid-month and then stop. Now, it just seems that I have pain there all the time now. My doctor did a lapryscopic surgery and saw nothing. He checked my ovaries and uterus and saw a fibroid on the outside of my uterus, but that's all. He put me on norethindrone, but the pain has only gotten worse. It hurts to cough, sit up, sneeze. I feel the need to hold my side when I do. Anyone else out there with these symptoms so late after pregnancy? ↑
I was sooooo happy to find this website. I too have been through the same as you all. I so love the fact that you all prove that I am not being psychosomatic as my husband once put it. When no one could pinpoint my problem, it was thought that I was seeking some much needed attention. Yeah, right!!!! ...I have my 2nd c-section 3 1/2 years ago. I have been suffering with these symptoms for nearly 3 years. It started off mild with just a little knot in my left side underneath my c-section scar and it has turned into a monthly, 2 wk long, gut-wrenching pain that won't give. It is a cycle after my period it hurts really bad for 2 wks and then subsides. And it has gotten worse with the pain. A year ago I went to the Gyn for my yearly and was basically told that it could be scar tissue. She sent me for a ultrasound and they still couldn't figure it out so she stated that they would remove it SINCE it was bothering me. That was not good enough for me. I did not want them to cut me and not know what they are looking for. I waited another year (which it got worse) and decided to have the surgery because it was hurting so bad and just wanted it fixed. Once I went to see the surgeon, I was still not comfortable with the "exploratory" surgery. I decided to wait and go back to the original dr that did my 1st c-section. The reason I didn't go back to him in the 1st place was because we live in a different state. My dr for the 2nd c-section is incompotent and my current Gyn lost her license as a Obstetrician. I was not feeling these "professional". I felt that I need to deal with doctors with experience and knowledge on the matter. I have an appointment with this dr at the end of the month. Hopefully he can tell me something new and take care of the problem. I do believe it's endometriosis especially after reading some of your entries. I just want to know what it is and get it fixed in a hurry so that I can go on with my life. I will keep you posted as I too hope that my entry will help others. God Bless. Jen ↑
I have been watching this site for over 6 months now and in the meantime have been experiencing my own pain and frustration with Doctors and the medical system in general. I am in Australia and would love to hear from anyone who can reccommend a good DR. in Perth, Melbourne or Adelaide. I had a C section in 2004 and have never been well since. I was hospitalised early in the pregnancy and sectioned at around 36 weeks due to severe pre-eclampsia. After the
C-section I was in incredible pain and complained to the nursing staff that my upper right abdomen was more painful than anywhere else. This was met with a blank stare by all! After many trips to the GP and lots of complaining about pain it was discovered I had an umbiliacle hernia which was operated on 10 months after my C-section. However to this day I still have very bad pains in this area when ever I lift push or pull anything that is over 10kg - this includes my daughter. This area is also still very swollen and on many days I look like I am still about 6 months pregnant. I also find it difficult to sit/lie on the floor and just day to day activities leave me exhausted and in pain. In the last 12 months I have also developed pain associated with my cycle (often after my period). This begins with very severe pain low down near my C-section scar but radiates all through the abdomen area. After about 4 days of complete "knock me out can't do anything but lie in bed pain" (Thank goodness for childcare and a supportive husband) the pain then becomes more like the feeling of being completely bruised throughout, at this stage I am able to walk around a little but still feel in a lot of pain and struggle to look after my 2 year old. A few more days of recuperation and I am able to get back to my life but there is always some pain there and I find even on my good days I still need some type of pain killer to get me through. Rolling over in my sleep is enough to wake me up crying with pain. This severe pain cycle however does not always occur with every period. Each period is painful to quite painful but the very extreme pain will come only every few months or so. I am booked in for a laproscope (with suspected possible endometriosis) in the next few months so I will let you know what they find. I have also had CAT/MRI and Ultrasounds which found nothing. I never so much as had a doctor before I got pregnant but now I seem to live on appointments and painkillers - it is no way to live. Good luck to you all, and please do not let anyone tell you it is in your head, you know your own body better than anyone else and when you need strength come to this website to affirm the fact that unfortunately it is happening to many other women too! Good luck and please keep posting all your symptoms and results as we all need to share as much information as possible because it is NOT being given feely by the medical profession. ↑
hi every1 im new 2 this. my spellin not that great thou. i had 4 c.sections 1983 1985 1987 1995 all boys,,, rite this will b long, but hopefully mite help some of u. im now 42 im 4ft 9 thats y had c.sec, 2 emergancy 2 planned. 1st 2 i was ok, after 3rd son i had lot pain on scar they gave me steriod injec in scar, yes it hurt... i put up with pain. like us woman do. cut long story short. well kind of short. i had 4th son suffered post natel deppression badly. i started havin pain left side few months after he was born. c my doc who done sod all 2 help me. i just put up with it. well in 2000 i got worse, yes i struggled that long. rite here we go... i had bouts of diahria just b4 period 4 8 months, doc then sent me 4 tests, in mean til i had kidney stones never suffered b4. in hospital 4 days. after that my scar got more painful an diahria got worse i couldnt stand the pain. i saw consultant in 2001 he said its ibs. in knew it was not that but done as he said with diet an fibre gel.that made it worse... b4 all this started i was 7stone. i now was 8stone. 1 nite i was in so much pain i rushed 2 the toilet in agony when i wiped myself i noticed i was passing blood in my poo. lots of it. i was rushed 2 hos, they kept me in 4 9days. they said it was crohns disease. well that was good news 4me now i had an answer 4 my pain, they done camara up bum .sorry not clever with doc words. it was so painful they had stop, the doc said yes he saw ulcers etc. i was so happy, i was then let home with a big plastic bag of pills and an answer 2 my pain, well i was on steriods an they made me ill found it hard breath my face neck an chest swollen an deppression got worse so worse i took over dose. well best move on... i went back c consultant few months later, sent me 2 wrong consultant twice, yes very funny... he said mite not b crohns. so y put me on all them pills eh. i kept goin back an i would not give up moaning at themi in end gave me another camara up bum even thou had sadation still killed me. in end i was put a sleep so they at least could do they job with out me in agony, well it turns out my bowels r fine.. rite thats fine so what is causing the pain in my left side on my scar my left side under rib an y my tummy so swollen, he said i refer u 2 some other consultant. yes get rid of me i faught... 6 months later saw new doc he said i will do a lap an c if u have adhesions. i waited 4 appointment. in mean til i had some kind of fit or minor stroke on rite side face arm an hand. still dont no y. was in hos 4 days. had c.scan lucky my brain is fine. my rite hand even now is very weak an shakes often but not carpol tunel symdrom. that doc side all my problems including pains was in my head said it was that fyb thing where i imaged it all. what a cheek. well in end had lap, and yes it was adhesions lots of them. worked out they had basicly cut my c,section scar 4 times. they were removed an 4 few months i felt fine. i even went on holiday with parents 4 a break in 2005. well good things never last do they, 5 months after adhension removed pain came back. so off 2 my gp again. i made him send me back 2 consultant as in pain again. well after 4 months wait back i went. hi i said im back again... this time i was taking no 4 answer an said in in same pain on left side and my tummy so swollen i look 6 months pregnant i couldnt even do my bra up as it felt like i was being strangled there. he was not happy 2 c me at all he must have faught god shes back... he said, well we have bin up, we went in so whats the problem, i said y dont u go down this time an c y in so swollen. ive been swollen 4 2 years now some thing not rite. well on june the 13th 2006 i went in an had camara down throat it showed ive now got sliding hiatus hernia 5cm an ulcers in gastric. least not imaging it. also had pain in left hip 4 years it works out i have a damaged nerve due to either adhensions or c.section. i go in on my birthday 4 injections 2 c if it helps. i still in so much pain. i cant sleep as hurts. its nearly 5am now. i take sleeping pills pain pills an dont work. my gp hates it when i go an c him he thinks im crazy an all i do is moan at him. he said he will strike me off his pratice if i keep going back.. i get panic attacks anxity attacks when i go out, i cant go out alone. i walk with a slight limp due 2 pain in hip left leg. scared case i loose blood or have stroke again. i only go shop i know where toilet is in case need go. i gave up work as kept droping stuff with rite hand an 2 much pain. sure my partner hates me as always winging about pain, well so go on an on. all i can say ladies is dont give up. u know pain when it hurts an u no its not in ur head. its taking me years 2 just get this far an im far from feeling ok, i feel at times my life is over, my relationship is suffering badly as sex is painfull. i dont have endo. the adhesions was all over my utresus which made sex hurt badly. im constantly tired an no energy. if i try do stuff i end up in bed for days on end in pain, i cant stretch as feel dizzy bend an it hurts burns my left side. i get out of breath just walking up stairs or small hill. at times i just cry 2 myself an think am i mad. i dont no what keeps me moaning at the docs. im sure something not rite an each time im proven rite when they do the tests something showes up. please keep trying with ur doc. dont give up. they try fob u off with excuses like ibs. u no ur body dont suffer for years like i have the problem dont heal its self. i will keep u informed on the out come of my nerve damage on left hip now affecting left leg with slight twitching. my pain releive consultant said its all due 2 having 4 c.sections which is major surgrey an adhesions could have made it worse. by the way if ur doc says its not adhesions tell him u want a lap just so u no, please look up adhesions after c,section it mite help u as it did me, well last c.section was just over 10 half years ago an i still in pain. no that not much help 2 some of u out there. if u leave it it only gets worse. i now get disabilty allowance as i cant do much 4 myself. i cant bend even put my knickers trousers etc on as kills me on left side tummy an hip i cant wash my feet lower legs as cant bend without pain, i cant even bend or lift left leg hip 2 even climb in bath, the pain is on left side scar half way cross scar it feels numb it poke it, weird eh.. pain in left hip now pain in left side of my lower back. i have dimples in lower back but now dimple on lelt side really gone in lots an its affecting my leg. pain tablets dont work at all, ive been put on so many pills i could open my own chemist. sounds funny but not helped me at all. mind u the steriods took pain away but i sufferer badly with side affects, sometimes i wish i was on them so i was not in pain. least i managed sleep where now i just toss an turn all night as each way i lay it hurts an my partner moans that im keeping him awake so i get up an come down stairs, when he wakes i try go sleep. so at present i sleep from 9am on wards i toss an turn but manage few hours sleep. i take so many pills more than i should. i try everythink 2 stop the pain an make me sleep but nothing works. i live in hope that some consultane can wafe a magic wand an make me better. just a quick word ive been refered back 2 my old consultant got app in aug, he couldnt wait get rid of me so it will be fun c his face when i walk in an im back,,,,, ps he sent me a letter saying glad u ok an adhesions have been removed in a nice way i hope i never see you again.. so cant wait til i see him an ruin his day.... well did say its a long history. ive even left boring bits out. least im not alone with my pain, but more i think about it more i think these c,sections are causing more problems than the consultants tell us about an more info should be told to women about the after affects that can cause years of suffering. lets c if someone famours suffers the same pain as us in the next few years after demarning a easy birth c.section maybe then more women will know more about it. cheers for reading my story i hope i might have been a slight bit of help to someone out there. bye 4 now diane ↑
Diane,
Wow it sounds like life is miserable for you. Your case sounds 1000 percent worse than my incisional endo and I couldn't imagine anything more painful.
First, no doctor should want to get rid of you. Maybe you can try another city with a bigger hospital? I don't know where you are at but it is an option.
I am telling everyone that we shoud all write to Oprah, this is such a huge thing that she always likes to reveal stuff like this.
I just wanted to let everyone know that 2 months after surgery for incisional endo that I am feeling great. No more pain for 10 to 14 days after my period. Please girls don' t let your doc's give you the run around. If the pain is cyclic tell them you want either a CT scan to verify its endo or surgery. I opted for surgery first since the wait for a CT scan was going to mean another month of pain. Totally worth it. Only down side was about 10 days post op of slow walking and draining but not more pain is worth that anyday. Good Luck Ladies! ↑
hi nicole ta 4 ur note. i live in london near the millium dome, our hospitals r not very good as u can tell, doubt if my gp would refer me on. i dont have no confidence anymore 2 make him listern 2 me. i used 2 b such a out going lady i was so bubbly an happy. well now im just sad. what gets me with these docs is they r so happy 2 give u pills an let u get on with it. when i was on steriods for 8 weeks i was on 32 pills a day like i said the side affects were bad. my face was so swollen big time. i would look in the mirror an cry it was like i wos lookin at a stranger. then 1 day a so called friend told me i look like a cabbage patch doll. i was that bad i didnt go out 4 2 weeks. she aint a friend now more... but my question is the docs said it might b crohns disease so take all these pills well it turns out it not crohns so y waiste 8 weeks of my life putting me on all them pills. thats all they do. here take these an come back see me 6months time... well my weight now 9stone look very fat im 2 stone over weight due to the tablets i take. so im feeling very depressed still. trying b brave an hold the tears in. im not sleeping much as cant lay on either side or back as pain so bad. i dont get much support from my other half an my sons dont help im sick of telling em i cant cope an please help tidy up but they dont. if i bend done pick cup or there dirty clothes up it hurts, if i streatch up it hurts if i bend my left leg 2 walk up stairs it hurts. god im in foul mood. sorry 4 going on. well go doc app this thurs so lets c what pills i get give then. take in 2 account ive taken 3 over doses last 4 years u think they would b bit more careful.. has any of u had adhesions return. sure mine have had em lazared yr ago but pain returned doc said they dont grow back. also have any of u had the injection 4 nerve damage. got nerve damage in left hip pelvis. need 3 injec does is hurt. well my new found buddies cheers 4 letting me bore u. bit less stressed now. u all try a have a good few days hopefully pain free. til next time. good night an god bless love diane xxx ↑
Hi girls, Nikki again. Apparently the site has created a new must register process since the last time I visited, and someone took my name!! Anywho, am now having a period every 2 weeks, even tho' I have an IUD (which I LOVE btw...), and the pain is really bad again for about 2 days of my heaviest 'flow'. Forget holding my bladder, if I do, after I go the pain is excruciating. The doc went back to this adenomysis thing and I'm still curious if anyone has been diagnosed with this or knows anything about it. Unlike a lot of you, I don't have any lumps or bumps, so I wonder if we have the same thing....As for me, adhesions were removed larascopy, thought that would end it - IT DIDN'T, endo was ruled out (which I had years ago, and there is NO comparision between what I'm feeling now). So now Doc#2 has gone back to his adenomyosis, which is basically only 'cured' by hysterectomy, a choice I'm just not ready to make. I'm going for the 100th ultrasound next month. Why we keep doing US and not an MRI....I wonder if some stupid insurance HMO bull$hit. I guess I will just have to insist. If you know anything about this adenomyosis, please clue me in. All I've found is that it is basically like edno in the tissue of your uterus. Call me stupid, but isn't that what the uterus IS? Endometrial tissue, right? Confused here.......AND, if it IS adenomyosis, how in the world would that effect my bladder???? Any advice welcome. So glad but sad most of us are still here. Peace- Nikki ↑
Hello everyone! It has been awhile since I have posted but I have been keeping myself updated with the message board. I had incisional endo removed back in Febuary and am now having the same symptoms starting again. The burning in my hip and the lump in my scar line is back. I am scared to call the doctor again because I dont want to have anymore surgery or poking and proding. Has anyone who had the endo removed gotten their symptoms back? Until last month I have been great, last month I put off to a bad month and now with this cycle it has gotten worse. I am so frustrated, I have 3 kids (2,3 & 6 yrs.) and cant afford to not be able to care for them, and cant afford not to work. Has anyone found any pain relievers that actually work? Ughhh!!! Why is it that the women always get the short end of the stick? I am lucky because my other half is pretty supportive but I dont think he actually gets how much pain I am really in. Well, thanks for listening to me vent and if anyone has anymore info it would be appreiciated!!!
bye for now , Robin ↑
If it wasn't for this site I would still be in pain today - I wrote to Oprah today. I think she would be great at getting the word out about the pain so many of us are having and have been through. I am crying reading the pain some of you are still in. Hang in there...there is help out there you just need to hunt it down. ↑
I cannot even tell you how much better it makes me feel to have found this site. I have a history of panic attacks and haven't been sure if that is what I am going through with the pain on my right side. I had a c-section just about 6 months ago, after a 29 hour labor. I lost a lot of blood and was in immense pain afterwards. When I was healing and could get out of bed I took one step and collapsed in pain because I had what I believe to be an adhesion pulling on my right side. The pulling pain eventually went away but I have been stuck with a burning pain on that side. It was better but lately seems to have gotten worse, perhaps with the weight of my son increasing or do to the fact I am back at work and sitting in a chair for 5 hours a day. I am glad to hear I am not the only one going through this. I have a call in to my ob so I will see what she recommends and I also have an appt. with a pcp tomorrow. I hope they do something immediately as it is painful for me to pick up my son and I know he wants to be held. Like another poster wrote, I cringe when I hear about people who would prefer c-sections. I wish I had never had to have one but the little bugger wouldn't come out! I hope I get some relief today, at least reading this makes me feel better. ↑
My heart goes out to all of you ... my wife Heidi is nearly six weeks post pardom and is having the same complications described by many of you on this forum. She has some swelling on the left side that is constantly painful. She has her six week appointment with the OB this week and I plan to print this entire forum for him to review. In addition to the complications described here, Heidi also has a constant "needle and pin" feeling from incision to belly button and all across her abdomen that is especially aggrevated by underwear and clothing, even if if loose. The pain is very debilitating and frustrating to take, especially since nursing and holding our baby boy is made painful and difficult. We will be praying for all of you. ↑
Hello everyone...I have a question. It sounds like I have some of what most in here have but my pain is right at the bottem of my ribs and it gos into my back. It just spered from the right side to the left. Its killing me!! I thought i was going crazy till i found this post. Oh I;m now 5mon. post c-cesetion and i'v had the pain for 3 mon.s now. Please let me know if you have any ideas....I'll be laying here in a ball......LOL Thanx ↑
This website is getting funny about our login names and passwords. Anyway....As much as I dislike Oprah, I think you are right that we need someone to champion our cause. It seems like we have all been enduring test after test and "treatment" after treatment with no luck. Just had an MRI that only showed a little endo in the uterus....I suppose that must be the adenomyosis that someone mentioned. My Doc has suggested a pain specialist for "nerve entrapment" but I am not sure about that! More shots in the incisional area? No thanks. Oh, the last comment to me by Kirstan sounds like a hernia but I am no Doc but feel like by experience here we are all learning a PhD! I will check into adenomyosis. There definitely has to be some answers. With the rise in c-sections there are clearly going to be new challenges and conditions. Good luck and lots of prayers for all! ↑
hey jennybelly1, i keep coming back to this adenomyosis thing. going for a sono tomorrow. did your doc try a sono 1st? even after mine had a 'visual' a year ago with the laparascopy, he still wants to go this route, seems strange. he was the one who said the exploratory showed my uterus to be 'spongy'. what the hell is a uterus supposed to feel like, jell-o? i'm still flabbergasted at the amount of women electively choosing a c-section. vaginal birth was no walk in the park, but i would personally prefer a day or two of unpleasantness as opposed to a lifetime of discomfort, disbelieving doctors, suspicious nurses, and sometimes insensitive husbands. one thought for those of you with incisional pain, i had a tummy tuck about 6 months ago, and my 'new' scar feels so much better. its not tender or warm at all. it is actually a bit numb still, which is fine with me.
how many of you think this is just another insurance thing the HMO's are screwing up? silly tests and treatments, nothing very solid. i still think there's a possibilty its a conspiracy and doctors know all about this, but are afraid to acknowledge this because a) it could cause hysteria, and a woman who actually needs one will refuse to get it and jeapordize her baby or, b) they know they can't fix it . frankly, i'm tired of my uterus and i no longer see it as my womanhood, but more of a source of depression. maybe it is time to get the junk outta the trunk. its just so final......and from what i've heard sometimes a hysterectomy leads to a whole lot of new problems. i think all this shows is that women's health issues are still treated with disregard and remain on the back burner. nobody wants to talk about a spongy uterus, or heavy periods, etc. etc. until 'they' decide to recognize this and address the problem i have the feeling we'll all still be coming back to this forum. see ya'all over the next fifty years or so. we better get to know each other pretty well. i'll post whatever inconclusive results my sono shows tomorrow.
peace-
nikki ↑
I THINK ALL GYNO'S NEED TO GO BACK TO MED SCHOOL. YES I AM YELLING. THIS FRUSTRATION IS DRIVING ME MAD.
so, here we go again. when i had gyno problems in my early 20's i went to 6 (yes count them, SIX) different gyno's and got NOTHING, no diagnosis other than "you're just tender down there. all women have cramps on their period- DEAL WITH IT." i finally gave up and went to a general surgeon who immediately suspected endo and did a lap. they found a VERY large fibroid, and i had endo ALL over, even on surrounding organs. the doc said he had never seen anything so bad. i was on bedrest for 2 weeks! i had my ultrasound yesterday, and it showed a small fibroid, cysts on both ovearies, and that was it. the doc just called and said he wants to a lap. i guess he didn't check my file to see that he personally did one last year (when he removed adhesions). isn't that med school 101? CHECK THE FILE. he said a hysterectomy was probably my only way out. EXCUSE ME? you have no diagnosis to support that!! so, i'm now thinking i need a new doc. does anyone know if there some sort of gyno doc that specializes in irregularities? a specialists specialist? my plan of action is going to be that the next time i have a 'flare-up', i'm going to the ER and going to DEMAND an MRI. does anyone think that might give insight? this problem is now only when i'm on my period and is directly linked to my bladder. SHARP PIERCING PAIN. can't strecth, cough,fart, BM. if i hold my bladder too long, after i go it is debilitating, crippling pain. any suggestions? anyone, PLEASE. I CAN'T LIVE LIKE THIS. even if it IS only 2-3 days out of the month. HELP! ↑
