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I'll listen and I undestand. My address is Doahandshelle@hotmail.com. I work in a hospital and I know how it feels to not be able to do anything.

I also undestand what is like to have people say you don't have enough faith or your making it up. I've been there and I am still there. I had a cousin with the same disease who past away at nine years old. It is rare and it is a blessing in some ways. It is possible because miracles happen every day.

to michelle, my email is dymondcolon@aol.com feel free to write if you dont hear from me wiht inthe nest couple of days. i am in the process of moving into a new places and things are alittle crazy, not to meantion my bfs mom is trying to take me to court to take my baby. im not worried about that though. she has nothing to go on. and to rachel- i wish you the best with your baby. and keep in mind that they DO NOT know everything. i was also told my baby girl would neveer make it to full term and then at birth i was told she would never breathe or eat or even move since she doesnt ahve a brain- but she is doing extremely well and has passed the one year mark. if your little boy only has hydrocephalus- if i am correct, that is fluid on the brain- he will mroe then likely have a shunt put it- which can be complicated with the risk of infection or clogging but over all is the best thing to do. if my baby girl would have gotten the shunt put in earlier she would have never lost her vision- but because of the pressure that fluid caused she did. if you would like to talk more feel free to email me at the above email add! the best of luck to you!- oh and dont you ever give up no matter what they tell you- we are never given anything we cant handle and god sneds us our babies this way for a reason- as hard as that may be to see. i can surely say that even though this may havent been the worst thing that i have ever gone through it has rewarded me more then anythign i have ever worked at and i wouldnt change a thing.

my name ariel but im called oreo. I laos my baby to hydranencephaly 3 years ago. he was only born with a brain stem also. he lived almost 5 months and that was and still is the best 5 months i have ever had. the father of the child is still in the pix but he has another child of his own who just turned 1 recently. he told me that he heard once you have a child like Jay you are unable to have any more children...is this a true statement?

hi, and im sry its been along time since ive been on. im happy to say that lexi and i have jsut moved into our brand new home that i will eb ableto raise her in!!! she is doing so well, although she is teething like crazy right now. she barely has 3 teeth in, but all the others are coming in all at once!! so we are up till 9 am almost every morning till she finally crashes from being so tired. shes hit a very sudden growth spirt adn shes stretching out so much. i think shell be taller then me soon. she completely got rid of her bottle and binky, which was a total shockto me since her bink was the magic trick to calming her down. she loved that thing almost more then me i think, lol. she has been doing so well that all her dr.s have wanted a year strech between most visits except ones like her diabetes insipidus that needs to be montiored monthly. i am so happy with how strong she is and how healthy she is . thank you all so much for helping me with this time in my life. youve all been a blessing.and to oreo, if you still check this.....i ahvent had my period in over 7 months, and im not preg. i get a test monthly just to make sure. they are telling me that they think i went through premature menopause shortly after her birth. i had alot of health problems during my pregnancy so im not sure if that s why i may not be able to have anymroe children. i ahve been told by some that its common to have a baby after one of this condition. iwish you all the luck in the world and pray you get to be blessed with another child, i cant explain how much sorrow im in thinkin i may never have another child. oh, i have just been told that i was near death at the end of my labor ( im glad they didnt tell me how seriously ill i was durng the labor). and i was on magnessium for 7 days after her birth, which i have been told you are rarely on that for more then 24 hours- which explains hwo serious things were with me. my blood pressure was so high they say my body forced lexi out in order to save my life. and hers as well. i hope to hear back from you, and if you would like to talk one onone my email is dymondcolon@aol.com

Its funny I have read all your posts(not just here but else where too)1st you call this poor mother a liar, saying shes lying about her daughter, now you are saying nice things and what a good person, mother ect...to kiss up. I CAN"T STAND YOU KEEKEE!!
As to Dymond, Good Luck with your daughter. I am glad to hear you have a new home! How was the move? Hard with a toddler I bet! Good Luck and God Bless. Tell KEEKEE to take a HIKE!

ok is none of my business but it seems like if you were jelous of her! you cant tell her this things when you don't even know her. if she really anoys you don't read her posts. If she was a little hard at the beginning I think it was because so many people lie in this site that you don't know what to belive..gosh!

theres a book call "Charty" is about a girl that lived till she was eight, she was adopted, and her parents wrote about her story, it was a very good story, u should look it to gettin it,
good luck

What is funny? You people don't read the whole thread!!!! Some of the posts were erased. I don't care coward if you don't like me. My world don't revolve around ignorant people. DON"T RUIN THIS THREAD with your negativity.

To to keekee, thank you for making your statement. It was very kind of you to take up for me. Thanks again........Dymond, I tried to email you about a week ago. I think I had the wrong email address and will try to email you again. Wow, I am so proud of you. It takes a special kind of person to take care of Lexi. Don't let no one tell you different. I hope your MIL has left you alone and let you raise Lexi in peace. I can't believe she don't see what a great mother you are. Soon she will regret not being there for you when you need family the most. Try to remember no one prefect and your MIL will notice one day what she is doing is wrong........Have you checked out some support groups and government programs to help you and Lexi out? I worked with Easter Seals Birth to three with Avery. The support groups and therapists really help us during our hardships........Dymond, I hope you are feeling better. I was on magnasium for 24 hours after I gave birth to jordan b/c of high blood pressure/pre-eclampsia. 7 days is a long time to be on such a strong med. The side effects must have been very hard on you. I hope your health get better soon... My mom went through early menopause at 30. You may just be having irregular periods. Are you breast-feeding? Hopefully your cycle is just changing and your doctor can give you meds to start your period again. Honey, never give up hope. I would get a second opinion. You are way too young to be going through menopause sweetie. You're only 19(or 18) and have your whole life ahead of you. Please keep us updated on you and lexi. I always look forward to hear about how well y'all doing. Dymond tons of hugs and kisses!!!!! God Bless and take care

Hi Dymond, Im sorry some people are so rude to you. I don't know what you are going through but I hope it all works out for the best. I just posted a "mean people" question if you would like to vent.

Hey dymond, how is everything?? how is lexi?? i hope she is well. does she like the new house?? keep us updated please.

hey ! we are doing really good. shes hit another growth thingy and now shes almost taller then me, lol. she is teething still so she kinda upset every few days but nothing too bad. she loves it here- shes so happy all the time now. and she developing mentally alot more lately. the only thing i dont like is that i dont know anyone around here and im alone alot. lol- i need some new friends or mamas near me. that way i dont ahve to spend every day here by myself, lol. thanks every one for asking!!!

Good dymond!!!! Try to look for some mommy and me groups in your area. YMCA has some great groups. Check it out. Take care!!!

Hey Dymondy and lexi, how are you guys?? yea i know how you feel about being alone by yourself. it will be alright. i will do some research for ya and tell you if i find anything. Good luck!!

hey, we are both okay. todays my BIRTHDAY!! lol happy birthday to me! lol, yeah. i hope i find some new ppl around here, im getting so bored and lonely. but ill survive. i hate being aone for so long cuz then im left alone with my mind-then i start to think into things too much and i hate doing that. i ve been so down the past few days cuz i see ppl with their babies younger then lexi and then get mad at my self(not her at all, cuz i know she has nothing to do with it) well i think i more get jealous that they are doing things i always dreamed of doing with her like seeing her smile and laugh and play adn walk.......i mean please dont get me wrong i am so grateful for our time together and so happy with how amazing shes doing but i feel like she would be happier if she could enjoy more. i guess i feel like she may feel kinda like bored that she cant do much her self. like i said ithink too much into things......but i feel like such a bad mama when i get upset and have tears in my eyes watching other babies smile and play.