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Ok, so we are STILL in the hospital...going on two weeks now...and boy I'm dying to get home!! (Of course I dont want to leave until my dd is well enough though!). So, I think the Dr's have ruled out everything under the sun...from HIV, to rare infections, to CF. Which is a GOOD thing. I think they have finally narrowed it down to aspiration. Yes, thats right, after all those tests and days in the hospital the Dr's think she is breathing in some of her formula when she eats. They figured this out by finding fat (lipids) in the cells of her lungs and putting her on a feeding tube...since they've done the feeding tube she hasn't been on or needed oxygen. Whats funny is, the 2nd day we were in the hospital I asked the DR if aspiration was a possiblity and THAT Dr. told me no....isn't that a.funny thing.
The good news is, I think we finally have a TRUE answer...now, they just need to figure out how they are going to fix the problem. Thank you again ladies for all your prayers and support. I'll keep you posted on what they decide to do....