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Fibroids

539 posts on this thread and the last post was on February 14th, 2009 8:47 PM
There are currently 4829 members logged in.
sonja38 - November 7th, 2006 7:44 AM

i am 28 weeks today and i feel a little tired. i had an ultrasound last friday which showed that baby weighs 2 lbs 5 oz and is in the head down position. he is a good size for his age.

i had a few bouts of fainting recently and i think we chalked this up to not eating properly.

the doctor mentioned that i will most likely have a c-section, and he may have to make the incision up and down instead of the bikini line. has anyone had that type of incision before and is the recovery any slower or more painful?


ru93 - November 10th, 2006 9:57 AM

Has anyone had a myomectomy and if so, can you recommend a good doc? I am not pregnant yet but need to have a myomectomy to remove 2 very large fibroids and a cluster of mini fibroids. I hope to successfully try to get pregnant thereafter but right now my focus is to find a good NJ/NY doc. If you have any info, I would GREATLY appreciate it. THANK YOU!!!


MsMonet - November 11th, 2006 12:38 AM

Ru93-I had a Myomectomy on Oct 03 and if I were you I would check out Dr Ernst Bartisch. He founded one of the 4 Myo techniques. He is awesome!



Mink - November 16th, 2006 5:38 PM

Please write and encourage women with similar issues. I am 43 and wanting to become pregnant. Fsh level is slightly elevated 10.4 with some elevation in estradiol level. I have multiple fibroids. Reading and talking to various professionals has encouraged me to attempt to get pregnant as I dont have 10 years left to do this. Any advice and encouragement is welcomed. Ihave read so many positive stories. Life is the most beautiful gift. Need u.


MsMonet - November 16th, 2006 7:28 PM

Mink-Have faith and believe in yourself and your situation. Believe that you can and will overcome... Speak positive words over your situation. Call what isn't as if it is... You want a child, claim it and change your belief accordingly. I believe that our unborn children hear and see us and because of this I am working on my words and my thoughts. Ask God for guidance and Go online and do all of the research that you can... Go to all types of forums and read all the articles you can... Don't focus on your age... Focus on your beliefs... Get enough opinions until you can determine what path to travel... Have the doctors done any ultrasounds yet? Where are the fibroids located? Do they cause you any pain? What are your symptoms? There are many doctors who believe that you can go ahead and have children... My second doctor sent me away and told me to have children although she said my uterus was full. I had no sucess with pregnancy. The third doctor determined why my uterus was full and what was exactly in it and where the fibroids where located. It just so happened that I had a cyst, endo and fibroids and one was located on top of my uterus which acted as a birth control which made it so that I couldn't get pregnant... Not to say that this is your story... It's just important to know the location and the type of tumor... Some don't need to be removed at all. Have you tried to get preg before? Be encouraged, Mink.


hobbit13 - November 18th, 2006 10:43 AM

Hi everyone. I ended up miscarrying on Nov. 8th at 12w3d. I'm trying to deal with the loss, but now I'm also confused because I don't know what my next step should be. I feel like I should try again before surgery because I'm afraid I could lose everything if I did the surgery. We had no problems getting pregnant, but with all of the hormone levels being off and the progesterone being low, I'm not sure if the fibroid was the only cause of why I miscarried. Has anyone tried more than once before having the myo? Also, does anyone recommend a surgeon in Chicago? Thanks.


MsMonet - November 19th, 2006 11:34 AM

Hobbit-I am so sorry for your loss. I will pray for you and your family. You will get through this. Pls, ask God for direction and discernment. Where is your fibroid located? Who said it may have been part of the cause for miscarrying or will be if you try again? Make sure you get a couple of diff opinions...Research all of this online... Keep asking questions on the forum... Believe it or not... I found my doctor by going on line. I entered "Who is the best ob/gyn in new york". My doctors name came up... Apparently, he has had many articles written on him and gotten different awards. He's aweome! I just went to look up some things for you and apparently the University of Chicago Hospital has the best OB/GYN Dept in Chicago. Maybe you can find a doctor there... Things will work out. I believe it. God bless.



goldilocks9 - November 22nd, 2006 3:52 PM

Hobbit, so sorry for your loss-speak to your dr when you're ready. Mink, I turned 40 this year & feel as long as your healthy, no fertility issues, all should go well. This is my 2nd pregnancy after 17yrs. I'm 29wks, uterus is 30wks, I have a fibroid 7cm, & a son weighing in @ 3 lbs & change. I lost focus because the dr says I'm getting a section-which I'm greatly opposed to. I want natural childbirth, & I'm scheduled for accupuncture to help my breech son turn-but the fibroid is by his head. I don't know what questions to ask & if I'm doing everything possible. I'm a single mom-going it ALONE, no biggie though. I try to walk everyday, & need help with the pelvic lift to help him turn. I can't find the support I need to go natural-any suggestions...any stories of breech babies turning w/a fibroid in this position...


Mink - November 22nd, 2006 6:14 PM

I am very positive about the situation. It feels good to just try. Speaking to various professionals and reading at different forums has lead me to believe that the tests are "helpers" which give us an educated attempt at what we are doing. Knowledge is power, not negative. I have it planned, scheduled that after several attempts I will move to the next step. My positive mind and efforts can only lead me to some good educated attempts and to an adoption agency or to an egg donor-- BUT NOT WITHOUT TRYING MY OWN OVARIES. A NURSE TOLD ME THAT TEST ARE SCIENTIFIC--THEY ARE LADIES... TRY EVERY HEALTHY ATTEMPT YOU HAVE. I AM OLDER BUT WISE AND FEEL GOOD THAT I FINALLY WANT A BABY AND THAT I HAVE NOT HAD CHILDREN AND BEEN AN UNCARING/ABUSE OR IRRESPONSIBLE MOM.


hobbit13 - November 22nd, 2006 11:37 PM

MsMonet - thank you for your great words of encouragement. My fibroid is 12cm x 7cm (grew to 20x13 during the pregnancy) and is located in the back wall, towards the top. In all of my ultrasounds, they kept noting that the fetus was implanted very low, because it really had no other good place to implant because the fundus was taken up by the fibroid. Knowing this is kind of swaying me more towards the surgery, but I have made a couple of appointments for mid-December for two very good hospitals in Chicago...one of them being the University of Chicago. I wanted to wait until Dec. so that I might possibly be on a cycle again when I speak to them. I'm hoping that someone can assure me that since it seems for the past four years that it has only been this one large fibroid, that we can take this out and start trying once I've healed. I just think that if I try again without the surgery, that I might go farther along, but that it might happen again. I can honestly say that I don't know what I would do if I have to live through this again. I will keep you guys posted on how the doctor visits go and what our decisions turn out to be. Thank you so much for all of your help.


bigsis - November 24th, 2006 11:15 PM

Hello all, I am NOT pregnant, but my mother is, she's 14 weeks now. SHE has a fibroid but the doctor told us it's small and we shouldn't worry about it. It's weird that I'm talking here isntead of her but her and I are very close and i go to all her appointments and folow up and read on everything there is to know, she raised me as a single mom though she's married now. She got pregnant last year about october but she miscarried at 16 weeks! due to the amniocentisis she got, ti went very weird, painful and all, maybe something to do with the needle or an infection, it was a missed miscarriage so we had to hear the bad news while we were very excited in the ultrasound! It was so painful, I had never fone through anything like that, I was 18 at the time, Now I'm 19 and she got pregnant in late august. she's 14 weeks now but everytime we go for the ultrasound,. I GET SOO WORRIED and it affects me, having to hear "Sorry there is no heartbeat again". It's painful....and I dont wanna worry her you know...having to hear about the fibroid got me even MORE WORRIED..so i did a lot of reseach though the doc reasured us that its small and not to worry, I still WORRY..a lot..and it's crazy. Any advice for a "19 year old big sis?"..this will be my first brother or sister...thanks!


Sandra10 - November 27th, 2006 12:11 PM

I'm not pregnant, but am trying. I am 44 years old (just turned 44 in October); we are hoping to get pregnant! I do have 2 large fibroids and a endo polyp. My fibroids cause no symptons nor any pain whatsover, no bleeding, etc. Periods are completely normal. The fibroids are at the top of my uterus toward the right. I did see a great doctor at Boston Medical Center, but he wanted to put me on lupron and do a myo. No way! I will not have the surgery. I'm trying fibrovan right now, but haven't noticed any difference. I don't know the exact measurement of my fibroids, but roughly about the size of a tennis ball I guess. I can feel them. It feels like only one, but it may be two. It wasn't clear on the ultrasound. Anyway, all of your posts have given me great encouragement. Doctors are so quick to dismiss any chance of pregnancy and fibroids, so it was a God-send to find this site. I wish you all love and encouragement and healthy babies :) Thanks for your posts and for this site!


sonja38 - November 27th, 2006 4:49 PM

sandra, doctors are very quick to dismiss you and suggest surgery! but not all. my family doctor was very calm and relaxed and let me know he saw many women with fibroids who conceived and delivered healthy babies. even with large fibroids.

at our first ultrasound when they saw the fibroids, they were shocked. at my second ultrasound visit, we were asked if we were still going through with the pregnancy with the fibroids. they suggested an abortion. then the oby-gn told me with a straight face that in his opinion, i was not going to have the baby, and he believed the loss would come in the second trimester. i just looked silently and said nothing. he also told me, in the slight chance i happened to have this baby to not consider having another one until i remove the fibroids. can you imagine that? the thing is, surgery is a personal decision. suppose i had the abortion as they suggested, and then had the surgery to remove the fibroids; my oby-gn cannot guarantee that i will conceive follwong that because there may be excessive scarring. also, suppose i bleed a lot and they make a decision to do a hysterectomy, i am left with no option of conception whatsoever. so i decided to take a chance. even if they gave me a 90%, 50% or 30% chance of carrying my baby, that was a chance i was willing to take.

i am 31 weeks now thank god, and so far so good....i take it one day at a time. i asked my doctor again who is just surprised that things have gone so well so far. the thing is he is not experienced dealing with women with large fibroids so it showed in his initial reaction. to me he seems determined to do a c-section without considering all factors so that has me concerned a bit, but i want what is best for the baby. anyway, please do your own research, do not trust the word of just one doctor....maybe myo is for you, maybe not...you have a serious decision ahead of you. it was not a consideration for me oftentimes, the cause of a miscarriage is not the fibroid but some other factor, but because there is a fibroid present they point to it as a possible cause.


Sandra10 - November 27th, 2006 5:00 PM

Hi Sonja,

Thank you for taking time to write to me. I totally agree with everything you said; I did tons of research, I mean tons!!!! And I was also really concerned that surgery would leave scarring or worse I would wake up without my uterus anymore. It's a risk I just won't take at this point. I believe very much in what is meant to be and if it's meant for me to have a baby naturally, then I will. If not, then I know it wasn't in the plan for me. I'm so glad you are listening to your own heart and gut. I cannot believe they told you to have an abortion. The doctor I saw during the summer didn't want to consider any other options for me. He didn't even consider that I absolutely have no problems with this fibroid(s), and I've only been trying to conceive since late summer. I'm sure my fertility isn't what it was 20 or even 10 years ago, but it's not impossible. I'll keep the faith and trust that everything works out for the best, even when it's hard to always see that. Best of luck with your pregnancy; I will keep you in my thoughts; keep me posted on your progress :)


Mink - November 29th, 2006 9:54 PM

Hi Sandra10

I will be 44 next month. I have 3 fibroids. How are all of your other tests? I am working against a few factors. At first I was hopeless but now have learned that women can get pregnant with fibroids. So I am trying as time is a factor. I was told to use clear blue monitor which costs about $200. I have ovulation predictor tests also which measure LH hormone. Hoping to have some success. I have not tried to get pregnant before. Your situation/age issues are similar to mine,.... keep trying.


sonja38 - December 1st, 2006 3:53 PM

sandra....there are other factors to consider and lots of inspiration to be had. i didn't mention that my fibroids are intramural; within the wall of the uterus, and not pushing into the baby's space too much. that could make a difference in someone's decision to surgery or no surgery.

i have known people who have had fibroids who have had children. i know 2 friends who have had myo while in their early 20s. the fibroids grew back over a 10 yr period and both conceived in their 30s and delivered healthy babies. they also swear they will never go through a myo operation again. i also know a friend who had myo about 4 years ago and she and her husband are struggling to conceive. one of my friends who had the myo and has a baby, her sister also had fibroids. her sister had a baby girl many years ago while carrying a fibroid the size of a grapefruit which was punching into her uterus. her daughter was born healthy althought with a slightly misshapen head (due to pressing against the fibroid), which reshaped itself in due course. the daughter is now 19 years old, simply beautiful and studying to be a pilot.

two other friends had babies 2 years ago. they went to the same oby-gn and were pregnancy partners. let me explain first about friend H. she found out she had fibroids when she was first pregnant. she had a successful delivery, but her doctor pointed out the fibroids were much larger than they thought. she advised her, that since it was assymptomatic, to breast feed for a year, try and have another baby soon after and then stop. that is what she did. on having the second baby, discovered another friend S, was also pregnant. Friend H's fibroid was within the wall, but low down so she had to have a c-section. Friend S's fibroid was high up in the uterus and she could have had a natural delivery, but ended up with a section anyway. Friend S was 42 when she had her baby....she was advised years ago by doctors to have a hysterectomy, and forget about ever having children because of huge fibroids and other problems.. she and her husband conceived naturally, surprising everyone. she had a healthy baby boy, and friend H had a healthy baby girl...both born on the same day at 38 weeks. these people were my inspiration since they were not just statistics to me, but people i knew. there is hope and i am glad that you are a fighter. this last case i will tell you about is not someone with fibroids but nevertheless inspirational. a lady got married at 32, her husband was about 26. she had a miscarriage every year for the first 5 yrs of her marriage. she conceived once more at 36 and had a healthy child. she then went on to have 3 more children, one more in her 30's and the last 2 at 42 and 46. all perfectily healthy and she experienced no more miscarriages. the cause was uncertain. that lady is now in her mid 80s and has outlived her husband and one of her children. age and miscarriages did not stop her, so don't let it bother you. all the best!


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