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I had a c-section back in May and ever since I was released from the hospital I have been dizzy. Its not your typical vertigo dizzy... I can drive and function overall. Just a feeling of floating or falling every now and then. Or like I am on a boat on a fairly calm day off shore. I prefer to drive or be moving b/c I can't really feel the sensation as much. Do you mind elaborating on the dizziness you have? What does it feel like?
A little history... I was hospitalized back in 2003 for an unknown "virus" with a high fever and vomiting. Ever since I have been under the care of a Neuro b/c after I was released I started having little wormy muscle spasms primarily in my legs, but also at times in my arms and stomach area. Before this hospitilization I was ridiculously healthy - I didn't even have a PCP. I have had numerous MRIs dating back to 03... 1 in 2004... 1 in 2006 and then 2 since the birth of my daughter in May plus a spinal MRI (thorasic and cervical). The first MRI back in 03 they found "several non-specific white spots" but they "didn't present like MS". They looked old per the radiologist and Neuro possibly from childhood. 2 Neurologists have seen all of my MRIs (on CD) and they both DO NOT believe it is MS. All of the scans have stayed the same in every subsequent MRI and my recent spine MRI was completely normal. My Dr. believes that my muscle spasms might be due to damage the virus did to my neurological system when I had such a high fever. They ran every blood test known to man when I was in the hospital and everything came back normal... Lyme, Lupus, West Nile, etc etc. I still always wondered if MS would come up in my future and now since having this dizzy, lightheaded feeling for 4 months straight I am pretty nervous. It is always here. I feel better when I am well-rested but its still there in the background. At night it seems to intensify but still not to the point where I spin or can't eat/drive. I also find that I break out into a cold sweat when I am trying to get out of the house and get out running errands. I just feel generally un-well.
I have seen an ENT (Inner Ear ruled out after a normal ENG), Rheumatologist (doesn't believe I have any auto immune disease after reviewing recent lab work and discussing symptoms. She also thinks highly of my Neuro), Endocrinologist (re-testing my Thyroid and Adrenal functions but doesn't believe my dizziness is related - waiting on results), Hematologist (1st Hema diagnosed me with APS after an abnormal IGA finding, but 2nd Hema and Rheumy said IGA is non-specific when my DRVVT and IGG and IGM are ALL normal. Thinks it may be a mild case of Von Willebrands - All of this originated with an abnormal PTT that my Neuro found when he ran a TON of labs looking for auto immune disorders).
Long story short, nobody has a clue. My Neuro keeps reassuring me that its not MS b/c I don't present like MS. He says I look completely different than his MS patients. My only symptoms are dizziness and these muscle spasms/twitches. I recently started Lexapro due to the anxiety of not knowing where this never ending lightheaded/dizzy feeling is coming from and I have noticed that my wormy spasms seem more like twitches now. I think it might be due to the meds.
Any thoughts or help would be appreciated!

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