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Clotting And Late Loss!!

12 posts on this thread and the last post was on April 7th, 2009 11:03 AM
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sharelle - February 22nd, 2009 9:21 PM
[Original Post]

I gave birth last week at 19 weeks. My beautiful son was alive but died in my arms a few seconds later. No abnormalities etc. During my pregnancy I had a huge bleed out at 5 weeks including blood clots bigger than a mans thumb. Baby survived but this happened weekly until 10 weeks when it suddenly stopped. All was well with my son, heartbeat and growth perfect. Then at 13 weeks I started bleeding. Ultrasounds showed no reason and baby was still fine. Blood tests also told me nothing. I went to the emergency department 4 times to try and get to the bottom of it but all I was told was that if there was a heartbeat, the pregnancy would be fine. The bleeding was heavier than a normal period and lasted until last week when all of a sudden we discovered through ultrasound that my waters had ruptured and been slowly leaking. This was what caused my sons early birth and the rupture was explained because of the bleeding. I am utterly distraught and just want to know if anyone has been through anything similar and found out any cause.
Please help me, I need some answers as to why my baby died and nobody could help me.


paolan - February 23rd, 2009 10:50 PM

Hi did the patologis have a report ,they should check the cord and placenta .
Ask your ob why ;
Something must have happened you have rights to know.


sharelle - February 28th, 2009 8:24 PM

Thanks paolan for your reply. Never used the net like this so still learning how. The drs have booked me in for 4 weeks time to get results from their tests. I have auto immune issues as well and before the first bleed at 5 weeks, i was on prednisolone for my rheum arthritus. got told to stop that and the aspirin and just after that it all started. waiting on tests now, ana etc but after d and c only bled for a few days. Its almost as if I am ovulating already, only 2 weeks later!! Had sex with my partner and keep leaking out thick mucus. I really dont know much about anything and just wondering if you have any idea. Also on thyroxine if that helps. Thanks


paolan - February 28th, 2009 8:48 PM

Hi ,sorry about that
I know it's devastating not knowing , I lost my baby on Jan 2 at 39 weeks ,the date of my c section . I was ready for the surgery when they told me they could not detect baby's heartbeat ,baby died because of umbilical cord accident ,belive me I asked all the question I had to met with ob/ pathologist and so forth since . Wait for the result .
I wish you all the best . From what you are telling me it lookes like something ws wrong with placenta but not sure ,this is your first pregnancy?



sharelle - March 1st, 2009 1:42 AM

You poor thing, what a shocking way to lose a child. This was my third preg, I', 40 now and had my youngest 8 years ago. Dont think it was the placenta as he was big for his date and still alive when he was born. Because of the loss of amniotic fluid, the cord had wrapped round his neck 3 times but he was just too little to survive. No idea why my waters broke so soon yet, with my daughters, they only broke as they crowned. Was this your first? Its been 2 weeks now and I still find it hard to breathe sometimes esp when I look at the photos I took. Are you going to try again? I can only send you a big hug from here in Australia and hope that things go a little more smoothly for you whatever you decide to do now.


paolan - March 1st, 2009 11:35 AM

Thanks Sharelle , I Turned 35 in Jan what a year to celebrate:(
I live in Nyc and I have 2 boys ,this last pregnncy was a baby boy too , I'd like to try again this was also my 3 c section ; I'm terrified tough I could ,would not want to ever have to loose a baby again . My ob gave me the ok to tray in Aug . Next pregnancy I will go to a perinatologist , more check ups and so on , for my baby a doppler of the umbilical cord would have saved his life but no signs that something was wrong ,it takes time to heal ,a long time ,i miss him everyday ,The odd is I went for my last prenatal exam on dec 31 ,baby was ok , his umbilical cord looked line the one of a phone line .it's called hpercoiled umbilical cord and it takes time to happen ,that's why if diagnosed it could have been prevented ,I can't stop thinking that few hours /day earlier baby would have been here .
Best to you .


dbruning - March 4th, 2009 1:18 PM

Sharelle, I am so so so sorry for your loss. I went through a similiar situation and lost my daughter at 15 weeks. I too had to give birth. I hope you requested pathology reports to try and get some answers, although do not be upset if they can not give you definitive answers that sometimes does occur. As it did with me. Its sad to say I completely understand where you are coming from, and for me too it was the most devestating thing that I have ever had to go through in my life. I wish that on no one. I am so sorry you are going through this and know that you are not alone. you can talk to people and nurses and even here on the internet. you NEED an outlet as I KNOW I did and still do!


stefkay - March 4th, 2009 11:18 PM

sharelle, I am so sorry to hear this happened to you. Please ask questions and demand answers. There should most definitely be a path report and you should have blood tests done to check for other clotting and or immune disorders. I've read autoimmune disorders can cause miscarriages. I am frustrated to read that they had you STOP the aspirin and prednisolone???? WHY? I'm sorry but you should totally be on those during a preganncy. It sounds like at least the aspirin. If you are not satisfied with what your doctor says I'd go to see an RE (reproductive endocrinologist) or another ob and request a miscarriage panel of tests. There are soooo many things to test for (ana included) so hang in there and know you will be able to try again. It's just horrible to go through this even once.



sharelle - March 18th, 2009 8:38 PM

Thanks for all your help guys, just gotten over the first month of loss and the first period after that, know that I had lost my son but had this irrational hope that he had managed to hide away, the period has just gotten through to me that he is really gone.I am going to demand more bloodwork esp for MTHFR and get my autopsy etc results on 8 April.It looks like the doctors missed a few warning signs that should have been picked up so am so bloody angry right now!!! I have started the baby aspirin, folate and vit B and will stay on this cocktail from now and hopefully another preg, regardless of what they say.Paolan, how are you doing sweetie? You guys have been my Godsend, the only thing that has kept me from crawling into myself and never coming out. How do all these amazing women go through this pain over and over again and never give up? I have spent hours on this site reading various threads, the tears pouring down my face for both myself and them, and then more tears, happy ones, for those of them that have happy endings.To all of you amazing women out there, you inspire me and without having the bravery to open your hearts on this site, many of us "newbies" would still be asking ourselves "why'? Thank you all for giving me a start on what questions to ask and what tests to demand.Will let you know what I find out and once again, Thank you xxxx


paolan - March 20th, 2009 7:13 PM

Hi Sharelle ,wow time is going by fast and yet it feels like my baby has been gone way too long I don't know it's a strange feeling ,my oldest son is only 3 1/2 and he doesn't understand the concept of death for him his little baby brother is just away and one day he'll be ready to come home somehow it's how I feel ,I can't bear the tought of not having him around ,someday I do better then others , I have learnd to ignore the comments but they can still hurt ( like it was god's way, maybe god intened for you to have only 2 ,you already have 2 and so on .) It takes me forever to fall asleep at night and yet I'm exausted.Since my tragedy I've learned of many others and my heart aches for all the parents that at some point had to endure the loss of their child/children ; How amazing it's to see how they recovered and made peace . I hope one day that will be me .I hope you get some answers and sorry about the long post. Best wishes to all moms out there


mare623 - April 4th, 2009 1:21 AM

Sharelle - your exact story happened to me last night. I had bleeding that they said could have caused an infection which caused the amniotic fluid to leak. I also started reading today that abnormalities add to this as well and they recently found 3 soft signs.
Here's my story:
Hi,
I'm dealing with a miscarriage at 19 1/2 weeks. Labor had to be induced and I had to deliver. This is worst experience I have ever gone through. My husband and I accepted the fact that it was from complications from the beginning. It was almost a relief when we were told because I had been so sick and had so much bleeding and the baby had abnormalities. It was a relief that we could just try again and hope for a healthier pregnancy. The worst is the actual procedure. I was too far for a D&C. I was hoping not to feel it when it came out but I did. My husband is traumatized from the look on my face and from the heavy drugs I was on to easy my pain. I can't sleep, I am so distraught. I plan to call for a counselor for both of us. Like I said I accept that the baby was not going to happen, but to go through that was horrifying. I'm sorry, this is my first time writing about it, it happened last night.
I really believe that things happen for a reason, and God doesn't give us more than we can handle.
But right now, at least for now, it's definitely more than I can handle.

Thanks for reading my story, I needed to get it off my chest.

Mare


stefkay - April 4th, 2009 10:59 AM

Mare, I am so so sorry and heartbroken to read your story. Please do look into the counseling for both of you as I know that will be a tremendous help in moving on to the next chapter of your lives. This is devastating. Nothing anyone can say to ease the pain but know there are many women here who are suffering as well and talking about it helps a bit.


mare623 - April 7th, 2009 11:03 AM

Hi Stefkay,
Thank you. It's getting a little better. I've been looking up a lot of information on the Internet and it helps me to cope better if I understand the situation from the medical standpoint. There was nothing anyone could have done, it was a miscarriage waiting to happen as soon as I started bleeding a lot back in February. I was told I had Placenta Previa but the bleeding just wouldn't stop and it almost seemed like they couldn't explain it or just didn't want to worry but they may have known it was a miscarriage. I don't know, I try not to stress myself with the way the doctor handled my situation. I won't be going back to him though, we weren't pleased with him. Of course I can be emotional but I like facts more, don't worry about sparing my feelings, just tell me the truth. And I feel he didn't do that. I basically had to ask him if this was a miscarriage and then he said yes. It was frustrating, but all women should have the right to be fully and correctly informed. I think it better prepares you for the worse.
I'm sorry for long writing here! I'm guess I'm still letting it out!
Thanks for reading.
Mare