Pregnancy Info HOME

First off i want to tell you how sorry i am for your loss! I am 22 and went through almost the samething! My baby also had a cystic hygroma! It was found at 13wks! It was horriable!! We were told that we would have less then 10% of the baby making it to full term! I went to a specialist, and i was told to come back in 3 weeks.. that he said it looked like it might go away!! When i went in 3wks my baby was dead! I was induced and delivered! I was told that this would not happen again!! You have less then 1% of this happening again! Its a mutation fluke! VERY VERY RARE!!! My doctor has only seen 2 in 25 years!! This happened to me almost 2wks ago! I am sure that this is not going to happen!! You can carry, it was just a fluke!! You will be fine!! I get results back from the baby tom. morning! So just keep your faith up, you will have a healthy baby soon :)!!

Thank you so much Brook F. for your encouraging words. I am so sorry for your loss too. We were told the same grim news of less than 10% survival rate. I can not believe this all happened to you only 2 weeks ago. Are you doing ok?

cmarie, I am doing well! I dont know your religion, but i think of it this way : God knew that i was going to keep this child no matter what the issue was.. and he wanted my hubby and i to have a healthy baby! So he is watching over her! My bleeding has stopped and my pregnancy test came out neg!! Which that means my levels are less then 15 hcg!! So i am hoping for my AF in the next two weeks :) and my hubby and i know this one is going to be healthy! My doctor told me that i can carry to term, it was the baby that was sick, and was more then likely not going to make it! So knowing this isnt going to happen again gives me tons of strength to try again! I put everything in Gods hands.. Knowing he wouldnt give us something we couldnt handle! I would try to stay calm and have fun ttc again!! Did they do any testing on the baby?? I am just waiting on my results! I will get them in the morning during my check up :)
Good luck to you!

good luck at your doctors appt today! Let me know how is goes. I agre with your way of thinking, I dont think God would put something like this in our lap again. And through this I have realized not to take anything for granite... Good things dont come easy ?!? They did not do testing on our baby once she was born. When I went to the specialist I got a CVS and thats how they determined she had Turner's Syndrome.

Well it turns out that my baby had lots of stuff wrong! Cleft lip.. and some other things.. The cystic hygroma killed him! IT was a BOY :( we thought it was a girl! He told me that i would have a 10% chance of anything happening to my next pregnancy! Did your doctor tell you if you got pregnant again that they recommended a amino?? just wondering! But told me that i could bd now :) hubby is happy.. and to try when i was ready! Thanks for your concern :)

A little boy! Doesnt it make you feel better to know. Our doctor told us we could get the amnio as soon as possible to eleviate any fears. I am sure that is what your doctor it going to do it for as well. It makes me feel better- all the assurance I can get at this point! Good news on the clear to ttc again!! I am sure this will be our time! We are both young, you 22 and me 27, we have plenty of time. Lots of luck!!!

Thank you! My doctor recommended us to get the amino done when we got pg again! but i am sure that we will be just ok! Good luck to you! If you like, you can join a few ladies on ttc for jan or feb babies :) Good luck to you :)

Thanks Brook F. - I will see you in TTC !

First I would like to say how sorry I am for your loss. I am currently in the middle of my second m/c, not as far along as you were but it hurts none the less and I feel for you. I pray you will be holding your healthy baby in your arms very soon. I was wondering if I could ask you a question, if you know did the cystic hygroma cause the Turner's syndrome or did the Turner's cause the cystic hygroma? The reason I ask is because my daughter had a cystic hygroma but she was about 18 months old when we found it. It was in her neck and was removed by surgery. The doctor said he couldn't tell me why she got it and really she could get it at anytime again. Well she is 8 now and never got it again. There were things in her health that I noticed before it was removed which didn't come back but now she has different health issues that we can't find a reason for. I was just wondering what you have found out medically about the hygroma.

Angela Mac- Thank you for your prayers, same for you right now. I am terribly sorry to hear what you are going through. It is a difficult tiem for you I am sure. The doctor told me that a cyctic hygroma in a fetus is related to a genetic abnormality. It was after we saw the hygroma that we went in for testing and found out it was Turner's Syndrome. However, after birth I dont know if they are related. When I did research on Turner's I found that symptoms are usually short in stature, thick or webbed neck, some have heart problems. But I honeslty do not think that since she had a hygroma this is the case. I hope this helped.

cmarie and brooke i know how you both feel,i was to pg with my 1st but on the 9th jan 06 went to have my scan and was told my baby had died and there was not heart beat, i gave birth to her on the 11th jan 06 at 22 wks, she was so small but well formed, we too had her cremated i called her Kayleigh anne, i would have been due on the 19th may 06 but instead i have a hospital appointment on the 15th may to tell me why and how my baby died and if i have any problems i know its nearly 4mths since i gave birth and i have to wait thats england GB for you so slack. i found talking on these threads that has help me a lot, i had my DDs name tattoo on my back so she will be with me forever, i will never forget her and when i have another i will tell them about her. at the moment i am have my "o" wk so i will TTC this wk hopefully i will fall on. if not i wil keep trying untill it happens. i wish you both the best of luck and hope you both find comfort on this forums as i have. (((((hugs)))) and baby dust to you both. joanne

I'm so sorry for your loss!! I just had a D&C yesterday due to a cystic hygroma...I was 10 weeks. I had an US sound at 7 weeks and heard the heartbeat and everything was fine, however, at 9 weeks for my second US the Dr saw the fluid on the back of the baby's neck and sent me to a specialist the very next day and he confirmed that it was a cystic hygroma and it was a good size one but he said about 60% are caused by chromosomal abnormalities and that sometimes they can resolve on their own!! We were terrified because I've already had one miscarriage at 8 weeks and it was happening again!! We hoped and prayed everything would be alright...The Dr scheduled me for a chorion villa sampling(CVS) which would show anything abnormal, it's usually done in the 1st trimester and is similiar to an aminio which is done later in the 2nd trimester!! I went in Wed for the test and they did the US and the baby was dead no heartbeat so yesterday I had my D&C and I feel that GOD made the decision for US...It doesn't make it any easier though...It's still a huge loss in your Life!! Once I found out my baby had a cystic hygroma, I wanted to know everything there is to know about it!! Why was it happening to me!! They are very common, 1 in 200 pregancies and the perinatal specialist I went to said he sees about 2 a week!! They are usually significant of some chromosomal abnormality usually a trisomy 21(Down's), 18 or 15 and usually Turner's syndrome which ofen times is picked up in the 2nd trimester. Everything that I have read doesn't give a good prognosis but there is that hope that it will resolve on it's own and some do!! It is also extremely rare 1% of it happening again in any other future pregnancies!! If you have any other questions about cystic hygroma email me at JenDuck@hotmail.com or if anyone just wants to talk about what they went through...I'd love to hear from you...Your in my thoughts and prayers...JENNY XXOO

im sorry for your loss im 24 and 7 weeks ago i went for my 20 week scan i wasnt to sure if my dates were right i found out i was 24 weeks my baby was dead they said it was cystic hygroma.my baby's head was ingaged i was ready to go into labour.i had to deliver her the next day.im waiting for genitcs test to be done but the doctor reasured me that it would never happen again.he said it only happens to 1 in 2000.