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anyone?

Hi tryingx3-My little boy is 6 w/DS and yes there are lots of resources out there. There are local groups (i.e. we have the Down Syndrome Guild of Dallas and the Down Syndrome Partnership of Tarrant County in our area. There is also the National Down Syndrome Society. I tried to post a great link, but it wouldn't let me. So, I'll have to try and spell it out...check out "downsyndrome" dot com. Make sense? It's chock full of informative links. If I can answer any questions, please let me know. The unknown is so scary and I was petrified when our little boy was born. However, he has brought us more joy than I can express. I hope your nephew is healthy. Take care.

Mom23 - thank you so much for posting. I will check out the site. As you know we are in the early days and they are taking things one step at a time. Fortunately, yes, it appears that he is pretty healthy for a DS baby. There are some concerns about his eyesight and he has a small hole in his heart they are going to monitor, but we are praying it will close on its own. He seems to respond to sounds and is very good at EATING and filling a diaper! :-) What words of encouragement can I offer? Anything I can do to help them?

I am so glad to hear that he appears to be healthy. Our little boy was and we were so fortunate. He also had a small hole in his heart, but it closed up on its own and he was given a clean bill of health. I guess the first thing that comes to mind on words of encouragement would be to tell them they have a beautiful boy and that he is such a blessing. It's the unknown that is the most scary. There are some great resources out there. I wish you guys the best and if they have any questions I can answer just let me know.

Thank you. I live 2 hrs from them, but have been treating this as any new proud parents should be. I know they were dealt a blow, but they seem to be doing good...but they do know they need family and friends more than ever right now. My brother also lost his job this week...and they were struggling prior to that. I am so worried about them! Sometimes life can be pretty hard! This is also hard for me as after 2 miscarriages, I have a beautiful, healthy, outgoing 7mo old little girl. I hope they will learn a lot from each other. My family is not one to make comparisons, although I worry that the tendency will be since they are so close in age.

Trying: I just happened to read this and thought of my MIL's cousin's daughter who has a 3 year old little girl with DS. They (the little girl's parents) felt so devastated at first but are so filled with love and joy with their little girl now. MIL babysits for my little guy and for this little girl as well on a regular basis and tells me so many cute stories about her. She's already spelling out her name, loves to "read" books (she repeats the story that's already been read to her before) and boy does she have personality. MIL tells me she can't believe the little girl has DS, she's so smart and so healthy and is a "little miss attitude." I guess she was expecting to notice some huge difference but she isn't seeing it. I'm sure there are various degrees of down's syndrome. I wish your brother and sis in law all the best with their new baby boy.

Thank you Perl! :-) Right now he is doing what babies do and I assume he will keep on doing the same. :-) I'm sure he and Katie will be eating on each others toys before too long!