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Thank you alamo24!!! You are sooooo right. Even if I did have the screening and everything seemed fine, I still would be worrying!! I'm almost sick and tired of not being able to relax and enjoy being pregnant. I have a 7 year old healthy son who is so excited about becoming a big brother and all I can think about is how am I going to tell him if something is wrong. I have spoken with my doctors about all my anxiety and all they can say is stop worrying and if I cant and its effecting my daily life then do the amnio. Hearing all the wonderful positive stoires from everyone really helps. Thanks again and I think I'm going to ask my doc if I have had a level2 ultrasound already or not and go from there.

Boothy---with the amnio, you just have to go with your heart. I have high anxiety even when I am not pregnant and also had anxiety with my other two pregnancies and there were no markers with them. I knew the amnio was the only way for me to get through the rest of my pregnancy. I would never tell someone to do the amnio or not because of the risk but for me it was the right choice and I am so glad I did it. It has relieved so much stress in my life right now. I am only 26 weeks so I had a long way to go to worry that much. If you are considering doing the amnio just rememeber it is not as bad as you think. Like I said before, getting my blood drawn was more painful to me. It also depends on the doctor who does it. My doctor was a perinatologist and does them daily and was very good. I had total confidence in him. I also took off work for a week and stayed in bed for about 2-3 days and had lots of help from family with my other kids. Thank god everything turned out ok with me. Just pray about it and go with your heart. I know it is such a tough decision. I had alot of support from family but also got some criticism from others. But it was ultimately mine and my husbands decision and it was the right thing for us. I would not ever have terminated the pregnancy but had to do just so I could enjoy the rest of my pregnancy. I have a good friend at my church who also is pregnant and her baby also has the EIF. She is to be induced this monday. So I am sure she will have a happing outcome too. I still have anxiety but not about the EIF. I worry on days he does not move very well. I am a nurse at a hospital and work close with my OB doctor and alot of labor and delivery nurses and am constantly having them check fetal heart tones on me, at least weekly. They are so good to relieve my worries. So I am just a natural worrier. I am anxiously waiting for february to get here. Good luck on your decision and hang in there. You are going to be fine. Gretchen

alamo24 my blood screening came out the same thing 1/10,000 but i just came from the Dr. he always mentions it to me and said once the baby is born they will check the baby and im freaking out i guess its a bad day for me... on my level II thats when i found out about the spot and they said everything looked good and didnt send me for no further testing...

even though it become less due to the spot..

Boothy... I completely understand your anxiety. I am constantly thinking about whether or not my baby is healthy. I have to keep telling myself everything is fine. After my ultrasound my doctors refused the amnio to me. Canadian health care would not cover it for an EIF she had said. This somewhat reassured me. At 23 weeks i had decided i had to have the amnio and would go to a private facility and pay for it. The doctor there said he would not give me the amnio either. The doctors seem so confident that this marker is just a "variant of normal". I tell myself this daily. Although my anxiousness never really subsides there isn't anything that can be changed now. I just count down the weeks.... 11 more to go. I continue to pray for my baby and all the other mothers going through this.

ya they told me the same thing he didnt want to do an amino but i know how you feel cindyp i cant stop thinking about it im scared and i only have 2wks to go

Gretchen, CIndyp and everyone eles. Thank you for all your kind words and sharing of your own feelings and situations. Words can't describe how better I feel after talking with you all and just knowing that someone eles understands! I feel like people around me are getting tired of hearing me complain about this. And even when I bring it up with my OB..its almost like she is annoyed with me. I am a worrier about alot of things however with a situation like this who wouldnt be concerned...even a little. Gretchen..I completely understand why you would do the amnio just for peace of mind!!! I mean I'm 29 weeks and there is no way I would ever terminate the pregnancy at this stage of the game but just knowing what to expect would help ease me. Even if it did come back that my baby did have DS, at least I could mentally prepare myself, my family and my son. There is just something in side me saying"dont do it". My husband thinks that there is no need and that I would be putting the baby in more risk then the risk of DS it self. He is completely confident that there is nothing wrong. I wish I felt the same. Thanks to everyone again...:~)

I've been reading the answers to this original post from start to finish! I had my 20 week u/s 4 WEEKS AGO!!! and my doc only just told me TODAY about an EIF! And he told me so casually.......deep down I really don't think there is cause for concern because my quad and afp were totally normal. Honestly sometimes I think they really give you too much information!
I don't want to spend the next 16 weeks a nervous wreck, this is ridiculous. Should I demand another u/s?

adamsmom--maybe you could ask for another ultrasound later in the pregnancy like around 28-30 weeks. I had the amnio but my perinatologist and OB wanted me to do another ultrasound at 28-30 weeks. If you did one now it may just show the same thing. I go for my next ultrasound on Nov 25th. Although I did the amnio I am still hoping that the EIF is gone. This will be my third 4D ultrasound. Gretchen

yes gretchen I am going to ask when I go for my next check up in 4 weeks. I was so taken aback yesterday that I just shut down, my doctor didnt seem concerned at all, now I have a million questions. I have to say though after reading all of the posts on this site that I have peace of mind. Technology nowadays tells you TOO much, a few years ago an EIF didn't even show up on a u/s. Good luck luck with everything, keep me posted won't you?

Boothy..thanks for checking on me. I ended up not doing the amnio. I got to the dr’s office on the day of the amnio with mixed feelings. The dr did another u/s and said everything looked normal and that the EIF is a normal variant. I hope and pray that all goes well.. I have my up and down days but I try to stay positive and pray for the best.

concerndmom- the dr. told me the same thing he did not want to do an amino im almost due and scared so i know what everyone is going through..

I was reading these posts when I was told at our 18 week ultrasound that my son has EIF and Chorodi Plexus Cyst and is at a higher risk for Downs. I denied amnio and lived in fear for 5 months. Well, my son was born in Sep, completely healthy and cute as a button. Please ladies don't let these occasional findings ruin your pregnancy they occur very OFTEN in completely healthy kids and only in 20-30% of trisomy babies.

agape - thank you for your comment it helps hearing great outcomes im just really nevrous about this whole thing and i love hearing good outcomes.

Hi everyone. I too just recieved the news yesterday that my little girl has an EIF on her heart. Although my OB explained everything to me and begged me not to worry, I was a complete mess. I got home and all I did was cry. I was completely devestated and felt completely alone. My husband is in training at the academy and won't be home until Dec 19th. I just can't burden him right now with this while he's away. I have never posted on a blog before but felt that I had to thank all of you who have posted here throughout the years, your stories have all touched me and have brought me so much Hope! I can't thank you all enough for bringing me some peace of mind and for sharing your stories, I don't feel so alone anymore. I will continue to visit this blog for hope and inspiration and I promise to post once my little girl is born (due date is April 2nd ) hopefully with another happy ending. Thank you

Hi everyone-
I just wanted to let you all know that I had my baby girl on Wednesday and after months of worry she was born perfectly healthy...no down syndrome or any problems with her heart. It is SUCH a relief! I will keep you all in my thoughts and prayers. I just know you will all have similar outcomes!