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I may not be of help and am as lost as you are.I had an ultrasascan and blood test done at week 13, blood test result turn out fine for down syndrome test, risk level is very low. Ultrascan looks alright with my baby's features except for it's nasal bone. I did another scan at week 16, and nasal bone is absent, this puts me in a high risk group for down syndrome. In which, by week 20, if the scan does not show the nasal bone, i would need to proceed for an amnio test. My gynae did provide me with backgrounds that over the last 6 months, he's seen 5-6 babies whose scan showed no nasal bone but they are born normal babies. Not sure if this helps at all. Can't answer directly to your question but am only able to offer what i know. And i suppose, it quite difficult to find support groups for our case, cos' our babys' conditions are rare.

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