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Anyone Have A Child With Ectodermal Displasia?

0 posts on this thread and the last post was on October 22nd, 2008 5:46 PM
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PigletCamm - October 22nd, 2008 5:46 PM
 [Original Post]

I just wanna talk to other moms and dads with children for ED. Just wanna get some ideas on how to cope and such. what type of problems are you experiencing?