FIBRO And Pregnancy

6 Replies
krooked_19 - August 16

I recently got diagnosed with fibromyalgia and my husband wants to have a child. I dont know that i want to anymore because of how i already feel. If anyone has it and is either pregnant or has been please let me know how the pregnancy was and if it made the pain worse. any help with this would be appreciated.

 

ZenMomaS - October 8

I was recently in a very similar situation to you. A few months after I was diagnosed with fibromyalgia, I discovered I was pregnant. I was very skeptical at first. My fibro causes me a lot of pain and I wondered how I could manage it along with a pregnancy. I braced myself for the worst, and was quite surprised when I actually started to feel better. Turns out, in many women who have autoimmune disorders find that their symptoms become dormant. A midwife I saw described it as "your body becomes a happy place for a baby to grow", and a nurse pract_tioner said that many women who experience relief from pain don't necessarily get it back when their pregnancy's over. Now that's not to say that you won't feel a little tired.

 

wellsey23 - October 21

I have had FS for many, many years but not officially diagnosed until 10 months ago. Also wondering if I could not manage it along with pregnancy, I was very concerned that due to all of the meds I was on, I would not be able to have a healthy pregancy or baby. To top it off, I am 39 years old and considered of "advanced maternal age". While I am only in my 6th week of my pregnancy, my fibro has not worsened, not yet at least. The main issue I have is being tired a lot and I mean a lot. So much so that I decided to quit my part time job and focus on having as little stress as possible. I try not to nap during the day as I struggle to sleep at night as it is. I do have low back pain that seems to have increased since becoming pregnant but it is not so severe that I am unable to function normally. When I was pregnant with my son 5 years ago, my pregnancy was anything but easy (hence the time in between) but not because of pain but because of morning sickness that was 24/7. Although it did not start until my 8th week, it lasted until the day I delivered. I was miserable to say the least and gained only 11 lbs (my son was 7lbs 1oz). So needless to say, while I am anxious with this pregnancy, I am trying to stay postive and alleviate as much stress as possible to make this the happiest and most enjoyable experience for myself and my family. We definitely feel blessed to have just gotten this far and continue to pray everything goes smoothly. So to answer your question, each pregnancy is different and you never really know which hand you'll be dealt so if a child is something you really want, you just need to weigh your options and decide what is best for YOU. Talk with husband and be open about your concerns. I can definitely say I would not have made it through my last pregancy or the beginnings of this one without my husband's support. If you have a strong foundation to begin with, it makes all the difference in the world. Good luck and I wish you all the best!

 

alicia11 - February 18

I have had fibromyalgia for a few years. I recently had a baby in September and found out that i'm expecting another baby this coming September. With my first pregnancy the fibro was wonderful and pretty much non existant! With this second pregnancy, it has been HELL!!! I am in so much pain I can hardly stand it!! My rheumatologist won't give me any medication while i'm pregnant without an ok from my OB. I've only seen the nurse and ultrasound tech so far and won't see my Doctor for 2 weeks. I plan to talk to him about medication because i'm a suffering and can not make it through the next 7 months without some help. I'm not sure what medication (if any) he will decide to use, but I will keep everyone posted incase your fibro becomes an issue. If anyone knows of any safe medication, I would love to know about it so I can make an informed decision about what to take.

 

WantingBaby81 - April 15

Although Your Posts are very uplifting in some parts, the other parts that conflict with the positives arent enought to really help me weigh out my decision. i wonder if anyone else will post their experiences. I've been having a flare up since around summer of 2009 and am wondering when i'm going to go into remission and give my body a d__n break! I used to have bad flare ups for a day or two then I was ok, but This is the worst its been since i was diagnosed with it after giving birth to my first daughter (she was 8 months old when it developed) I need help. I want to get better so i can have a baby! I get so emotional and so upset because there is nothing i can do that will make this go away. What if it never does? what If I can never have another child? It makes me cry. Help!

 

laurenrose - June 6

I have suffered with Fibromyalgia for many, many, many years. I am currently 25 years old - in a committed, monogamous relationship and living with my significant other. He has helped me the entire way along my journey (for those of you have FMS, you know that it is quite an exhausting and terrifying process of dead ends and misdiagnoses' in order to finally reach a correct FMS Diagnoses - in most cases the doc's don't usually just hit the nail on the head right away..) I suffered with a grueling diagnoses process for a very long time - with a misdiagnoses of Adenoma Tumors (tumors caused by Birth Control) in August of 2010 - and immediately went off of hormonal birth control in order to remedy these tumors. By the time I was properly diagnosed with FMS and cleared of the Adenoma diagoses, I was about 5 months off of hormonal birth control - (I did have tumors, all were benign though thank God, and knowing what hormonal birth control can potentially do I opted to stay off of it). So by the time I had been cleared of Adenomas and FINALLY after years of awful diagnostic testing - I was diagnosed with FMS - and as luck would have it, about a month later found out I was pregnant. I had been on literally COUNTLESS medications, under xray machines, MRI, CATScans, Anesthesia, had injections of Cortisone, been put under about 5 times for colonoscopy/endoscopy/gallblader and other tests - there was just no way that I could have continued with a full-term pregnancy and delivered a healthy baby. I did unfortunately have no choice but to eliminate the embryo due to medical risks. On top of that mountain of emotions, I also had only *just* begun to understand what having Fibromyalgia would mean to me, mean for my partner, mean for my parents and other family members, mean for my career and mean for the rest of my life. FIbromyalgia is a **chronic** and un-curable pain condition with sooo very many many other a__sociated ailments such as migraines, sleep-terrors, IBS, anxiety and panic disorders, and much more. Knowing that all of these symptoms were not seperate - and in fact all of my symptoms were related in this way and connected by this everlasting and awful body pain - really resonated with me in a profound way. Will my body ever be able to handle a pregnancy? Will I be able to keep up with a child while my own body is torn to bits with this pain syndrome and all the a__sociated syndromes and illnesses that come alone with it? Will I be able to take medications during my pregnancy? Breastfeeding - is it going to be as painful as they say (this is the only surefire study done in which the answer is yes, it is just too painful for FMS patients...but I wonder still..) Can anybody offer me (and the writer from Screename "WantingBaby81") any insight - good or bad?

 

WantingBaby81 - June 8

Thank you Lauren Rose. Your words hit me hard and I'm sorry you have to go through this. I'm so sorry you had to lose your baby. Your experiences gave me a lot to think about and came to the conclusion that It would not be fair to an innocent baby to be born when I cannot barely take care of my exsisting family. My husband doesnt want any more children because of the state of the world right now and I have to make that big decision whether or not to get my tubes tied so i dont have to be on hormonal birth control since my IUD failed and started coming out. I hope you find the answers you are looking for. Love and Light

 

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