Is Genetic Counseling Worth It

7 Replies
Emy - August 4

I have an appt. next week for genetic counseling but I am thinking about cancelling it. Originally I had scheduled it because my hubby is adopted and we wanted to get it done. But now, I am nervous. I don't think I would want to know if anything was wrong. It is not like I would terminate the pregnancy and I would not want to be anxious for 6 months about what problems the baby could have. But then, some people are saying that I would want to know so that I could prepare myself. What do you gals think? Any ideas? Has anyone been through it? What can I expect?

 

melonbelly - August 4

I saw a genetic counselor recently because 4 years ago I was diagnosed with malignant melanoma. I was given a 50% chance of seeing five years. Fast forward 4 years and I became unexpectantly pregnant. Anyhow, the genetic counselor just basically went over mine and my partner's health history. He informed me of the risks involved. For example, very rarely melanoma can cross the placenta. Luckily, I am disease free as far as I know. They also did a level 2 ultrasound of my son. It was amazing how detailed it was, they looked over every organ and explained it to me. He seems to be extremely healthy and is due in two weeks. :) For me, it was a positive experience and I'm glad I had it done. I also never would've terminated the pregnancy, but I think I would've liked to be able to prepare myself if there were potential problems. Most likely, you will also have a good result, and may be able to relax and enjoy your pregnancy. However, you should do what's most comfortable for you and your hubby. Good luck. :)

 

E - August 5

I would want to know so I could prepare (educationally & emotionally) for what was to come. If I were going to have a DS child, I would want to know as much as possible about the disorder. Often times, the postpartum period is more stressful than the pregnancy. Personally, I would need time to get used to the idea so that postpartum wise, I was in the best shape possible. It is such a personal decision, I think. There is no right or wrong answer about this, that is for sure:) I wish you the BEST!!!!

 

BBK - August 5

Counceling by itself is for educational purposes. They'll explain all the exam options, risk statistics etc, and answer questions. After that you can make a more educated decision of what test if any you should have.

 

E - August 5

True, BBK. I was thinking about the tests and their results... What harm can counseling cause? You will be able to make a more informed decision.

 

Emy - August 5

Thanks for all your input. I think I will keep the appointment....as you have said, what harm can the counseling do other than to educate me.

 

dm - August 5

I have to agree with the others. I, personally, would just want to know so I could be prepared. My daughter was born with a very rare disability and we didn't know until she was born. I had never heard of the disorder and would have liked to have had the chance to educate myself about it. And also just to have time to get used to the idea that my child was going to have special needs. In my opinion it would have been much easier to cope with before hand rather just having it thrown at you at once. Good luck!!

 

POOPY - August 5

this is very intriguing , how could one not be curious ? Go ahead and do it as long as you approach it from the idea that all people have some sort of flaw in their own genetics . Lets just say , don't let the curiousity kill the cat , so to speak .

 

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