Just Wondering If -pg115223777318

15 Replies
Rabbits07 - July 6

anyone else who visits this forum has been diagnosed with Fibromyalgia? I am generally non-symptomatic 2nd trimester through weaning from the br___t, but for some reason I am relapsing already and ds is only 3 months old. I was just wondering how other women deal with this illness when raising their families?

 

JAI - July 6

Oh my g-d....wow someone else. Hi Rabbit07. My ds is 8 months old, born the end of October. At first I started having a little bit of hand and wrist pain right after he was born. Everyone told me it was just because I was now holding him and giving him a bottle and my body needed to adjust. Then in March I started to have SEVERE leg, knee and arm pains. So bad I would cry myself to sleep. I knew something was wrong so I went to my family doctor. She immediately sent me for blood work and then made an appointment with a specialist. I was then seen right away by the specialist and diagnosed with Fibromyalgia. I have been having a difficult time dealing with this. I am now on pain meds, but only take it at night since I do not want to be drugged up all the time or while I deal with the baby all day. It has really depressed me. It is hard I have lost alot of strength in my legs, and feel so guilty when I feel sore or tired and want to get down on the floor and play with my wonderful little guy. Please tell me your story.

 

Narcissus - July 7

Hi ladies, I do not have fibro but I am a chronic pain patient and I see an anesthesiologist on a regular basis for pain control. I get nerve blocks and also take pain meds daily. It sucks. I don't feel drugged bc I have built up such a tolerance to the meds. Taking care of Aja has been a huge struggle for me, at times. I am feeling my best in a long time but I worry that I will relapse. I cannot get pregnant bc I am on so many meds and I worry about not being able to cope with the pain should I get pregnant and am unable to use meds. Do either or both of you have sympathetic doctors to help you treat the pain? It took me years to get to this particular pain clinic and to be treated with respect and not like I am making this up.

 

AprilMum - July 7

I was so glad to see this when I woke up! I was diagnosed seven years ago. I feel like I got a break while I was pregnant - but my symptoms came back almost immediately with a vengeance. I'm having a really hard time dividing what little energy I have amongst the house, my daughter, and my marriage. I'm going to the Dr. next week to get a new medication regimen, and discuss options, because I'm just miserable. I know that's of no help, but for me, just to know there's another woman here who understands, feels good. I don't have many people in my life that I can talk to about it, because it's still not accepted by a lot of people as an actual illness. I know how I feel though, and I know I'm not a liar.....so I guess oh well, its just something I have to deal with.

 

AprilMum - July 7

Posted before I saw you Narc. - it took me forever to find a Dr. and the one I did find is a specialist who is four hours away. Sucks!

 

JAI - July 7

Not that I am happy that other people are going through the same as me, but_t is nice to have people that can relate to how I am feeling. I live in Canada and we get 1 year off for maternity so I am not due to go back until mid November, however I work in an office and sit at a desk from 8:30 to 5:00, I really do not see how I am going to be able to sit like that all day long. I am struggling with the thought of it. My body almost ceases up when I sit for long periods of time. My doctor told me she will back me up 150% if I feel I cannot return to work. I am just so frusterated with the whole thing. I feel like an old lady already.

 

Narcissus - July 7

A internal medicine doctor once told me, "you are too young to have so much pain and you should not be taking so many medications at your age". So, what he was saying was, "you must be at least 65 years old and/or have cancer for me to take your pain seriously". I never went back to him after that. He even wrote me a letter after I quit seeing him to remind me of his concern about my medication use. As if I am not in pain...What an a__s. I hate him to this day. It's ignorant doctors like him that make pain patients depressed. Sure, I would love to go back to the days when I only needed advil but the problem has progressed to a point that goes beyond OTC meds and I cannot afford the surgery that I need, and that my insurance denied, so I am left to treat the pain rather than fixing the problem. I am looking for a full time job right now so I can get better health insurance and one without a clause excluding the condition that I need treatment for.

 

Rabbits07 - July 7

Hey ladies. Sorry you are all having to deal with this, too. I first began having symptoms in 1995, shortly after the birth of my third baby. I was having severe arm and leg pain and would get exhausted so easily that I couldn't even brush my hair or put away dishes without taking a break! I went to numerous doctors, neurologists, etc., but back then FM was scarcely heard of and I was constantly told that all my symptoms were due to depression or 'in my head'. My symptoms waxed and waned over the years and in 1999 I finally found a doctor who had enough foresight to suspect FM. I received my diagnosis in the summer of 1999. I also have chemical/medication sensitivity which has severely limited the meds I can take....I can't even receive a local at the dentist because I have adverse reactions to it. Do any of you have any of the other things that commonly accompany FM, like IBS, TMJ, myofascial pain, etc.? I did a research paper for a cla__s a couple of years ago on FM and I think those things can be part of FM and not exclusive to it. I have been preg 2x since I was diagnosed and both times the first trimester was really hard, but then the 2nd trimester through the entire b/f process I was nonsymptomatic with my now 3-year-old. I had the same symptom free experience from the 2nd trimester on with this last pregnancy, only now my symptoms are coming back already and ds is only 3 months old, so I am both bummed and scared. The past month when I wake up in the mornings I am so stiff I can barely move. Now I pretty much have constant pain in my legs and arms, but it has become tolerable. I sometimes get severe pain in my neck and shoulders...I have had to go the hospital in the past due to the pain being so severe and receive Demerol shots. However, because prescription drug abuse is so bad in this area right now, the hospitals have a 'no chronic pain treatment policy' which I think is really unfair to those of us who are actually in pain. There are no pain clinics around here either. I worry about not being there for lo (and the others for that matter) 100%. I had myself convinced I would be nonsymptomatic for the next year until I finished b/f, like the last time. JAI, it is hard to deal with and accept, isn't it? It's like one day you are a vibrant, energetic person and the next thing you know you can hardly get up out of the bed and walking across the room is a feat. I also know what you ladies mean by being accepted as truly being ill. It's like people don't really recognize you are sick because you look healthy otherwise. I still have a hard time getting dh to understand that---yes, I was fine yesterday, but today I'm in immense pain...and I may still be in pain for the next year or it may be gone tomorrow, only to come back next week.-- I think the whole unpredictability of it all is as frustrating as the pain itself. Narc, have they determined a cause of your chronic pain or is it undefineable? Sorry to be so long winded, but it is nice to have someone to talk to who won't be rolling their eyes and knows what it's like!

 

AprilMum - July 7

Wow, everything you just said, I have said so many times! I do have a bevy of problems a__sociated with fm, and when I did finally find a Dr. that was worth a d__n, he really explained things in a way, that made me confident I wasn't crazy (sometimes, I really wondered!) - basically, I had ma__sive kidney failure when I was very young, and when your kidneys don't work, your immune system doesn't work - for me that resulted in fm, and various other complications. I also went through a billion doctors telling me I was feeling the way I was because I was depressed. Hello! I was depressed because of how I was feeling! I've almost given up on pain management. I get so tired of trying so many different things, and reacting badly to some, which puts me out for even longer, and then when I find something that does work, it eventually stops, and we have to start all over again. And I HATE the way everyone reacts to how much medication I take. I'm a very well-spoken person who in spite of everything, keeps my house in order, takes care of my family, and I take care of myself - I think I make it pretty clear that I'm not just some junkie. It scares me sometimes, because there are days when I think I just can't do it, and I have no idea how I'll get my daughter up out of her crib. I do feel some sort of "mom strength" - which is basically being driven by the fact that I don't have a choice. I can't not be a mom, that's just all there is to it.

 

AprilMum - July 7

Oh, and I have problems with my husband as well. Same exact thing, I don't LOOK sick, so I must not be. He doesn't mean to be an a__s, he just doesn't think sometimes.

 

Rabbits07 - July 7

JAI, it's good that you have such a supportive doctor. I have a cousin with FM and while her doctor has been good about helping her with a pain management regimen and even helped her to get med leave from work, the doctor told her that she would not support her trying to get disability! It makes no sense! Narc, I posted at the same time as you so I had not read your last response....you would think insurance co. would realize it would be cheaper in the long run to cover the procedure to fix a problem rather than pay for meds for life to treat the symptoms. I had also meant to respond where you mentioned about not being able to get preg because of the meds. I have actually been preg 3x since diagnosis, but lost one. It is my belief that I lost that baby because I was taking high doses of prescription Ibuprofen at the time to control pain. I was having a really bad relapse at that time and did NOT know that I was pregnant. The IB was not working at all and I was taking over the max allowable dose trying to get some relief. I only recently read a study that stated women who take IB while preg in the 1st trimester are significantly more likely to miscarry. Demerol is the only other pain med I have been found to be able to take without adverse reaction and my ob said it would have been safe during pregnancy....if I had only known. They didn't say the IB definitely caused it, but I feel it may have. If you do decide to have another ask your doctor about a pain med that is safe during pregnancy as I know they are out there.

 

Rabbits07 - July 7

Aprilmum, I hear you on the "reacting badly to some." My doc is willing to try more pain meds, but I am terrified. The last thing she tried me on landed me in the ER vomiting my guts out! It took about 20 minutes of begging and pleading to convince DH that something was wrong! He kept saying, "oh, you're just high and you're not used to it so you're freaking out." It was all I could do to stay concious and my dr. had promised me that she was starting me on such a low dose that I would feel nothing. Then I got up to go to the bathroom because I felt nauseated and I hit the floor....my legs were like spaghetti! And I couldn't talk as my speech was all slurred. Dh finally called Ask A Nurse and she told him I should not be doing that and to get me to the ER. I am terrified of trying new meds after that last experience.

 

austinsmom - July 7

I personally do not have fibromyalgia but my mom did....she pa__sed away at the young age of 52 because she had many other problems as well and her heart finally got her......she talked to me alot about this because she was concerned I would eventually get it as well.......her mother had it as well but she has pa__sed too.....my mom seemed to think it might run in the family.....have yall ever looked into whether this is the case or not?

 

austinsmom - July 7

I want to add that I am very sorry that you have had problems being taken seriously and that you are having to deal with this in the first place......I watched the same thing happen with my mom.....after she lost her leg due to diabetes complications and blood clots she was in such pain from the fibromyalgia and the phantom pains she would just sit and cry and there was nothing we could do to make it better....it was really a helpless situation......it was so so sad .....I hope from the bottom of my heart that things get better for each one of you.......

 

Rabbits07 - July 7

I do wonder if there is a hereditary link. My mom and sister have never been diagnosed with it, but they have alot of the same symptoms that I do....both of them were told it was anxiety/depression. austinsmom, it must have been hard to watch your mother suffer like that and not be able to help.....I'm sorry you had to go through that. I'm sure it must bear on your mind as to whether you will one day go through the same thing? I hope you do not. Thank you for being so empathetic...it really is hard I think for people to understand unless they have experienced it or had a loved one with it. A couple of years ago I took some college cla__ses on campus and it was all I could do to walk up the hill to the building my cla__s was in, plus it was wintertime and the cold intolerance didn't help at all. I was unable to park in handicap parking because I am not considered handicapped. MY SIL, however, who also has FM went to college in TN and explained her situation to the administrator (who was understanding because his wife's brother had it) and he gave her a permit to park in the handicap area. Alot of people think FM is a "catch-all" diagnosis or that people with chronic pain are just drug addicts, but that is simply not true.

 

austinsmom - July 7

yes rabbits I do sometimes wonder if I will get it as well since my mom was pretty convinced that it was a real possibility but what can you do other than live your life and enjoy it as much as you can while you can? I can see you have been through some really hard times and yet still keep a positive att_tude and continue to keep pushing through it......kudos to you!!!!!! You are a strong positive woman inspite of your pain and I say keep up the good work and may the lord one day take away this pain or give us all the wisdom not to judge people so quickly but to try to help each other out in any way possible.....god bless you rabbits and your children...

 

ADD A COMMENT:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?