Trust Your Instincts

37 Replies
Bonnie - February 24

I just wanted to share with you new mommies theimportance of trusting your instincts. My son is 4 weeks old and for the last 3 weeks he has cried so much that it makes a colic look like a breeze. Everytime he is awake (other than eating) he is screaming. Literally. We have had runs of 7-9 hours of inconsolable screaming, nothing we do helps. It's hard to even fathom what that is like. However, he eats like a pig and has put on a TON of weight and looks very healthy. Because of that I have been told as long as he is gaining weight he is fine and made to feel an over-protective mother. But I KNEW no baby can cry THAT much without passing out. (He sleeps less than 10 hours in a 24 hour period). I have honestly had times where I felt I couldn;t do this and thought of giving him (though I love him so!). ................ well, it turns out Mason has reflux. Normally reflux babies spit up and vomit a lot and lose weight, plus they won;t eat. Mason comfort feeds himself and the acid washed up and down his throat so he doesn't spit up. But he chokes on it frequently (and stops breathing) and it burns the h__lout of him. He has what is called Silent Reflux. We had an Upper GI done that showed it quite clearly. We have not found the right combo of meds to fix it yet (he has a specialist appointment Monday) but at least we now know what is wrong, and more importantly that I am not insane. I am glad I did not take no for an answer. .................I just wanted to share this for anyone else who may be going through the same. Silent Reflux is hard to diagnose, and mroe importantly this is a lesson to always trust our instincts!

 

anne - February 24

you sure it wasn't the vaccines? mine did that and we refused further vaccines. she has spit up again nor cries like that.

 

Bonnie - February 24

No, he has not had vaccines yet. My ped doesn;t do any till 2 months. Plus he had the Upper GI that showed what is was. His crying also was not over a day or two, it has been 3 weeks solid and literally every waking second. It's nuts. But at least I know the problem. The worst thing has been everyone making me feel I am just over protective when my son was clearly in pain. The silent reflux is not easy to spot either so I do not blame my doctor. I just want new mommies to trust their instincts when it comes to this kind of stuff, I think as a mother you "just know". Plus I wanted to point this out in case any other mother's are going through these same symptoms. :)

 

Ca__sieSong - February 24

Bonnie, my dd was just diagnosed with reflux as well. At least that is what the pediatrician thinks it is. She has just started taking meds and it's supposed to take a few days to kick in. I really hope it works. I was going crazy. She is almost 11 weeks and I was at my wits end. I expected 6 weeks to be the peak of her crying (usually is in most babies) but it just got worse and worse. I'm glad I finally took her in. I mean, she had been to the ped before, but nothing was done. This time I went in specifically because of her fussiness. She was gaining weight too and seemed healthy in every way. Just always upset and extremely fussy. I really hope this works.

 

Grantsmom - February 24

I am so glad you posted this, because I have a feeling that Grant has reflux. The only thing is he never spits up. And I mean that literaly He has spit up twice since being born and he is almost 3 months old! I asked the Dr. if he could have it and he said "probably not if he isn't spitting up alot" He is also a big baby and hearty eater. He already weighs almost 16 pounds. I've noticed that for almost every bottle he acts agitated and rears back alot. Also he makes "growling" noises like he is aggrevated. He burps alot too throughout the day and when he does he makes sounds like he is going to vomit but doesn't and he cries a little and makes a face. My ? is did Mason do any of this? I would appreciate your thoughts on it.

 

Bonnie - February 24

Grantsmom, that sounds exactly like Mason. Arching back is a common sign of relux because it helps clear the esophogus. Spitting up and losing weight are the most common signs. But Mason is the opposite. He comfort feeds, so he eats heavily. The stuff comes up his throat then he swallows it back down. If they do not cry, the reflux is no big deal. If he is crying a lot it is a big deal. The acid burns the thoat and hurtsthem pretty bad. It can do damage over a long period of time as well. If you consider what reflux is, it should be pretty obvious to you as a mom. You can hear them gurgling or "drowning" on the stuff. You can tell if he has liquid in the throat by the sounds. Does he choke? That is another sign of it. Mason chokes a lot but doesn;t spit it out.Look up http://www.infantrefluxdisease.com/ and any information on Silent Reflux. The message boards are great there. Some of those mom's have been through so much hell. ....I printed out there symptoms and signs form and checked off everything Mason had and went to the doctor who finally agreed. How is yourbaby when he is not eating? It could also be formula intolerence a well. But I would definately suspect ereflux in your case............Ca__sie I hope it works for you too. It seems to be a roller coaster of trial and error with this stuff. At least you know what is wrong though and can start working on it. :)

 

Ca__sieSong - February 24

Bonnie and Grantsmom... exactly! My dd, Aria, doesn't always spit up. I mean, they always ask if they spit up excessively... but Aria always seemed normal to me. All babies spit up... so I didn't know what to think. BUT just like your two babies, she does the thing where she has "wet burps" and then swallows it again. She also makes faces sometimes when swallowing during the day (grimaces) and chokes on it. I feel so bad for her now that I know what it is. She is on axid. What is your ds on, Bonnie?

 

Narcissus - February 24

Bonnie, I am sorry to hear about your son's reflux and the misery he has been in. I feel so awful for you bc I tear up if my child so much as pouts. I agree, trust your instincts and your problem is why I do not understand why a lot of parents think a newborn should cry it out. Children under the age of 3 months do not cry for manipulative purposes and when they cry, it is bc they need something. I can only imagine the stress you were under. TG you found out what the problem was and he is on his way to feeling better. (((HUGS)))

 

Bonnie - February 24

He was on Zantac which did not work and has now switched to Pepcid. Zantax, Pepcid, and Axid are all the same type of medication. They will not stop the refluxing (or the choking) but they reduce the acid so there is no pain. As long as the pain is gone and they gain weight then all is good as they eventually outgrow the reflux. I am afraid to get my hopes up as we just switched to the new formula and Pepcid 48 hours ago. But today has been pure bliss!! I'm not sure whether it is the medicine change or the formula. I am suspecting the formula as the Zantac seemed to help the acid as his cries sort of changed and he seemed to be having major tummy cramps. It's hard to explain why I feel that way, just observations. This new formula is insane though! Over $1,000.00 per month. Neocate it is called. I just got lucky and found a company willing to bill Medicaid for it ~whew~. It's a shame as we just picked up insurance and was going to cancel Medicaid (I don't like being on gov't a__sistence when not needed), but I sure can't now. :(

 

Bonnie - February 24

TY Narcissus. The thing was...and you may remember my post a few weeks ago about me letting him CIO for 30 minutes and someone called me cold but the doctor had recommended me to do it. Back then, if I picked him up he would be consoled. So we just a__sumed it was him being attached to me but I remember posting about it is I thought that strange for him to start that so early. And then this huge whole debate started. Well.....it got to the point where he could not be consoled. And then it got really bad with 7-9 hours of non-stop. I have been very depressed over it as that much crying just takes it's toll. Honestly I became robotic with him. I could not stop his crying no matter what we tried (even car rides did not stop it) so I would just sit there in a chair holding him while he kicked and flailed and screamed and I'd just give up and stare at a wall. And tehre are times where I would look at him and love him so much it hurt.....and times where I wanted to take him to the hospital and have them take him away.....and of course then the guilt sets in. I hate for anyone to ever have to go through this which is why I wanted to post. ..... I hate to get my hopes up, but last night and today have been bliss!!! He seems like a totally different baby so I am praying these meds are working. I will have to give it the weekend to make sure. I even got to play with him today. I held up a rattle and he watched it. I never get that kind of time with him so I am so excited. I am so worried it is just a fluke, lol. ........ I would never wish this on anyone. I don't really have a problem with CIO to a point. It just sucks when you know deep down something is wrong and cannot do anything. To be honest there have beent imes where Mason has had to be put in his bed and cried for an hour.....but we had to for our own sanity. Sometimes it justgets to the point where you can;t take it when the crying is that bad. We even called the hospital but since we knew the problem, physically it is not an emergency. He just hurts and it's a matter of trial and error to find the right treatment to work. I really hope this is it! What a good day it's been. :)

 

Ca__sieSong - February 24

How long is it supposed to take for the meds to work? this is her second day.

 

Bonnie - February 24

The nurse told me to giveit at least 48 hours. The other Web site I showed you has people that their doctors have said it takes at least a week. I would give it at least a good 48 hours to notice at least some change, but that is just my opinion and I am new to all this. Have you noticed any change at all? What kind of formula do you use?

 

twist - February 24

I'm glad to hear you know what the problem is now Bonnie, I remember all your earlier posts about trying to get him to sleep. Good on you for being persistent and I hope you can soon find something that helps him.

 

Cat - February 26

Bonnie, I could have written your post. I share the same story. Thankfully, we were finally taken seriously and my son started Zantac late last week. It's already helping and I was told it would take a full week.

 

Cat - February 26

Here is a support group, not sure if it's been mentioned or not. If there are dashes, take them out. http://www.infantrefluxdisease.com/forums/

 

Bonnie - February 26

Awww Cat, I am so sorry to hear you are going through this too. I dunno what the deal is with Mason's meds. We tried Zantac and now Pepcid (similar medication) and both worked like magic for one day and got my hopes all up, and then the next day it was right back to the usual. Freaky that both meds did that. Maybe he needs a higher dose or a different med all together. Either way I am going mental, lol. Tomorrow is teh specialist appointment (woot) so I'll see what she say.

 

Bonnie - February 26

Yeah, I have been living on those message boards lately, have you beenthere?

 

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