Congenital Diaphragmatic Hernia

1 Replies
paigecox07 - April 7

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 2500 babies - 1600 babies each year in the U.S. alone. 50% of these babies do not survive. The cause is not known. Nearly 4 million babies are born in the United States each year. This means that approximately 1600 babies are born with CDH each year - in the U.S. alone! There are more babies born with CDH than with Cystic Fibrosis (1 in 3900) and it's almost as common as Spina Bifida (7 in 10,000)- yet, you probably have never heard of it until it affected someone that you love. There is no goverment funded research being done, and virtually no media coverage. My nephew, Caleb was born November 8, 2008(31 weeks gestation)& passed away November 10, 2008 He had a massive bilateral diaphramatic hernia, which allowed his stomach, liver & small intestines into the chest cavity preventing lung growth. My sister had developed pre-eclampsia and was sent to UAB, it was then they discovered his hernia,only 2 days before he was born. we had never heard of CDH until then. If you or anyone you know has been affected by Congenital Diaphragmatic Hernia please visit CHERUBS- The Association Of Congenital Diaphragmatic Hernia Awareness, Research & Support. This is a wonderful support & research group made up of CDH families!

 

clindholm - April 8

I am so sorry to hear about your nephew, how tragic. I have never heard of this horrible condition.

 

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