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Dymond - I read your post on the 22nd, and I'm very sorry I didn't respond then - I might have been able to say something that would have prevented the harsh comments you received. I didn't respond because you obviously need support... I quickly researched your daughters diagnosis online... being the kind of person who tends to focus on hard cold facts, I realized that the facts are not what you need right now - you already know them. I don't know any way I personally can help you. Beyond what the doctors and specialists say, only thing that I know of that can be done is to love your little girl every day that you have her and pray. Your situation has touched my heart, and I pray for strength for you to deal with whatever happens.

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