MTHFR HELP PLEASE

8 Replies
stefkay - November 19

Hi, I normally would post this on the MTHFR? thread, but it is so long and I don't know how often it is read. That said, I am hetero for mthfr C677T and have had several miscarriages. I have no idea if they were related to the mthfr or not....my dr's all seem to say no. BUT, I am currently pregnant again and last week had the first good u/s I've ever had with dates being correct and a hb. I am now worrying that I should be on the shots. I want to take every precaution possible this time. I've been on baby aspirin, folic and b vits for some time now (eve in last two losses and all of my losses were early--up to 6.5 weeks). I am currently 7 weeks 1 day. I emailed my dr. and he said I could start heparin today if I wanted to but he doesn't necessarily think i need it. Should i start it? I'm scared to use it if I don't need it....anyone have experience with this????? Any input is sooooooo appreciated as I need to make a quick decision.

 

EricaH - November 19

Hi Stefkay, I think you should definitely do the shots. But ask him about lovenox instead of the heparin. I hear it has no side affects. I am hetero for the A mutation and have had 2 losses..1 early loss and 1 2nd trimester loss. I am taking no chances the next time around and am definitely wanting the shots. G/L hun!

 

stefkay - November 19

Thank you Erica! I just talked to the nurse and she told me they do Lovenox instead so I am happy about that. She is getting the dose from him (probably will be the lowest available I'm guessing because I'm not considered high risk in the MTHFR dept I guess) and then she's calling me before she calls the pharmacy with it. I guess I'm starting them today! Do you think 7 weeks is too late to start these? I had a goo u/s at 6 w3d (last Wed). I'm hoping I'm not too late...

 

EricaH - November 19

Good I'm glad you are able to do the Lovenox! I don't think 7 weeks is too late. I have heard of woman starting at like 8 weeks. I am going to suggest taking it at a positive ovulation. I heard a lot of woman doing that. Either way the earliest you can get on it, do it.

 

stefkay - November 19

Yep, that is what the dr. said...I asked him if it is too late to start it and he said that there isn't anything that says definitively when to start, but in my case the sooner the better. Now that you mention it, I have heard of some women's doctors not starting them on it until a heartbeat is seen on an u/s....here's hoping it helps and doesn't cause any complications! :) Thank you!

 

stefkay - November 19

Well, I just did my first shot today (once a day-40mg). It wasn't bad at all. In fact I thought it would be harder to stick the needle in so I put it in so hard it bounced back out! Scared the c___p out of me so I had to do it again more slowly. Ugh! Now I hope this was all a good idea. I'm kind of down because it still cost a lot (I had NO IDEA how expensive these shots are!!!!!) and now I'm worrying about other things--possible complications and then I just read that i might not be able to have an epidural because of the lovenox!? I'll be so happy if I just make it that far, but I've always said I wanted an epidural because I'm such a baby about pain....oh well :)

 

EricaH - November 20

Stefkay- I wouldn't worry about the whole epidural part..lol.. congrats on getting your shots! I am anxiously awaiting to start mine! ouch! I can't remember if it was heparin that is 2x's a day or if it's the lovenox. Either way it's better to be safe than sorry. Does your insurance cover the shots? I have to go over all of that next week with my dr. I am demanding to be put on the shots. Good luck hun! We should start a new MTHFR thread..lol.

 

Dylan - November 20

Hello Stefkay! I found out I am homozygous for A1298C MTHFR and have some immune problems after 5 miscarriages. I got pregnant again a little over a year ago. I took baby aspirin, Folgard and Lovenox. Throughout my pregnancy my doctor tried to convince me to stop the Lovenox because he didn't think I needed it. I refused to listen after all that I had learned. Last April I was blessed with a beautiful baby boy!!! The only side effects are bruising and possible bone loss. I took calcium for the bone loss. Good luck to you!!!

 

stefkay - November 20

Hi Erica and Dylan! Thanks for your posts...I did start the Lovenox and they are once a day. My dr. said they are safer than heparin--the nurse didn't explain why though. I am on a low dose I think of 40mg. Luckily my insurance paid but I still cried when I got to the pharmacy to pick them up. I thought it would be my highest copay of $45 and it was $200. BUT, I found out if insurance didn't pay it would have been over $1000 for one month supply!!!!!! That is insane...I wouldn't have been able to do it without the insurance so I'm really nervous that insurance will back out or something and not pay next month, lol (I don't think they can do that though?) :-S So I did first shot yesterday and it wasn't too bad. I sure don't like doing it though as I get all hot and heart races. I'm sure that anxiety will subside though. Erica, you are sure right about starting a new MTHFR thread....I tried to once, but nobody posted on it :(

 

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