Pregnant With MS

25 Replies
Kel - May 3

I am 25 yrs old and I have MS. This is my second pregnancy. Just wondering if anyone out there is in the same boat, do you have any problems with MS during pregnancy?

 

SRG - May 3

I am 13 weeks pregnant. I do not have MS, but I just wanted to say I think your a great person. You have MS and you are stilling enjoying your life and having a family. I am sure it is not easy. Good for you!

 

Lesley Ann - May 4

My sister has MS and she had three healthy children with no complications. I wish you all the best of luck.

 

sree - May 4

what is MS ? i am sorry i do not know what it is. can anyone explain ?

 

Lesley Ann - May 4

MS is multiple sclerosis

 

C - May 5

Kel, I don't have MS, but a close friend of mine does. She wasn't diagnosed until after she had her first (and only) child. She debated (no, agonized) over the decision to have another baby, but she and her husband decided not to do it. I guess one of her college girldfriends also has MS and became wheelchair-bound after giving birth to ther second daughter. I think the birth and stress of having two little ones at home brought about a nasty exacerbation. I think she is walking again, though. I know that is only one example, and my friend who decided not have another child may be being overly-cautious. Not sure if your MS is mild or severe, progressive or relapsing-remitting, but I would talk to your neurologist about any concerns you have. (By the way, my friend's neurologist told her it would be okay to have another child.) Who knows? Maybe your doc knows a couple of women in your area in the same boat as you. In any case, I hope all goes well for you, and that you and your baby are happy and healthy.

 

Kel - May 6

Hey C, Just wondering what type of MS your friend has (progressive or relapsing-remitting)

 

Nina - May 26

Hello, I just found out I'm 5 weeks pregnant, and was diagnosed with MS 2 months ago. I have a 10 month old son. My Dr. said "no more babies" but God had a different idea. So, here I am newly pregnant, new with MS, and feeling scared and excited and would love to share concerns/problems/ and joys!

 

Kel - May 26

Nina, it is so nice to hear from someone who actually knows what I am going through. I know you must be scared but just keep in mind that people with MS do have babies all the time!! What type of MS were you diagnosed with? What were your symptoms? My son will only be 16 months when I give birth to my second child so I know how you're feeling! I was diagnosed 4 years ago so feel free to ask me anything you want.

 

Nina - May 27

Hi Kel, I haven’t been told what type, I guess I’m too new in the game to be sure. My first episode was probably back in 1996, with numbness in my fingers and toes- went to the hospital- said it was stress! Then, in February of this year, there was a tingle sensation in my tongue and left cheek- I thought it was a bad tooth! Then that went away and it started in my fingers- was sent to neurologist- had ALL the tests done, and yes- it was MS. No one in my family has it, I don’t live in cold climate, so this is a complete surprise! As of now, the tingle in my fingers is still there but very slight. I think mine is brought on by stress, which is what scares me about having 2 babies! I am also very concerned about the development of the new baby because I took 3 doses of Rebif. My OB said there may not be a problem since I took half doses and it was so early of the pregnancy, and I can’t find any info about pregnancy and Rebif. So please tell me, what are/were your symptoms? How was your first pregnancy? Did you have natural or C-Section delivery? How do you feel now? What medications were you on? Sorry for asking so many questions!!!!!!!

 

Kel - May 27

Nina, well....where do I start?! At the time I was diagnosed with MS, my symptoms were blurred vision. I went to an eye doctor and was sent to a neurologist. He said I had optic neuritis (inflammation of the optic nerve). We discussed other symptoms that I had in the past, numbness and tingling in my legs, and a shock-like pain I experienced in the side of my neck. From this alone, he diagnosed me with MS. I had an MRI later on and he did a bunch of tests in the office to test vison, balance, strength and coordination. Anyway, my first pregnancy (3 yrs after) was fine. I was told that it is uncommon to have any problems relating to MS during your pregnancy. The time to watch for is about 2-4 months after. I had a minor relapse 2 months post-partum, numbness in my legs. I didn't require any treatment. My usual med. is Copaxone which I went off of as soon as trying to get pregnant the first time. I stayed off of it to b___st feed and then I got pregnant again. So, I haven't been on it for quite awhile. I had a natural delivery with my son, had an epidural (which I would do again in a heartbeat!). Besides that one relapse, I have been fine other than the usual pregnancy things. Mostly being really tired. When you were saying that no one in your family has MS, it's because it's not hereditary. It's more where you live and I think also your susceptibility to immune disorders or sicknesses. I have a weak immune system, had mono when I was younger and that sort of thing. It's so hard to know what causes it though, I've heard so many different things. I am going on and on aren't I? I hope this helps you a bit. How have you been feeling? How did your first pregnancy go?

 

Nina - May 27

My first pregnancy was great! No morning sickness- no real swelling- no labor pains- just a normal, great pregnancy. I did have to have a C-Section b/c my uterus is a little turned, but that went very smooth and easy too! My recovery time was very quick! So far with this pregnancy, I feel good, just a little tired and a little nauseated, (the smell and looks of peanut b___ter makes me gag). I have read so many places about mono as a child can become MS in adults- I have never been sick in my life (other that the occasional cold/flu)! But who knows!

 

Nina - June 1

I went to my neuro today (6/1) to discuss the pregnancy, and she said just to relax, eat right, and try not to be too stressed. (Easy for her to say) She also said not to worry about the 3 half does of Rebif I took- but I am worried because I still don’t have any real pregnancy symptoms yet, and I’m around 6 weeks. My gyn won’t see me until 8 weeks, so all I can do is worry!

 

Kel - June 1

Nina, it's natural to worry but.......don't! It won't do you any good. If your neurologist isn't worried, then you shouldn't be. With my first pregnancy, I didn't have any symptoms until I was about 3 months or so(if it makes you feel any better). Consider yourself lucky that you're not having morning sickness or anything c___ppy like that. Keep me posted. I am 30 1/2 weeks now....getting anxious.....

 

Nina - June 1

Kel, your are right. I'll keep ya posted on any new MS or Preg. symptom! But you keep ME posted!!!!!!!

 

Lauren - June 2

Hey girls. I am 24 and have relapsing-remitting MS. I was diagnosed almost 2 years ago but have had it probably since I was 16. I am almost 14 weeks pregnant with my first. My doctor said it was prefectly fine to have children. He said to stop taking my meds during pregnancy until my last month. Then I need to start back on my shots to help reduce the likelihood of having a bad episode after delivery. I have had the numbness in my legs, hands, face, and pretty much my whole left side. Also, I had optic neurits and lost my vision in my right eye for a little over a month. I have been to many seminars and everything I have heard is that pregnancy is no different than anyone who doesn't have MS. I was told though that I may not be able to have an epidural without a letter from my neurologist. Which is fine. My family is VERY supportive and I know if I do need help, they will be there. So far, no problems with my MS. In fact, I feel like a completely different person. I was pretty depressed before but now, I can't remember a time since I have gotten pregnant that I was sad about. Just be optimistic. Thats the best thing not only for the baby but also yourself.

 

Kel - June 2

Hey Lauren, Thanks for the reply. It's always good to hear of more people that are in the exact situation that I am. Congrats on your first pregnancy. Hope everything goes well for you. I found I was a lot less depressed ever since my first pregnancy. I don't know why that happens, maybe just having my mind occupied with much more important things all the time (my son). It's great that you have such a positive outlook, it must help that your doctor is encouraging you. My family doctor is really supportive, it's just my neurologist that isn't. Oh well, too bad for him! I've proved him wrong once and I'm about to do it again! Good luck with your first baby and feel free to write again if you need to chat.

 

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