PLEASE READ Inflammatory Breast Cancer

7 Replies
Kellie - November 17

Hi everybody my name is Kellie I'm 36 and 7wks 5d pregnant with our first child. I just wanted to know if any of you have ever heard of Inflammatory B--t Cancer. The reason I'm asking is because I was just diagnosed with it. I want you to know what to look for especially now that so many of us are preganant and our br___t are changing. This type of cancer is one of the most deadliest forms and is almost always misdiagnosed as a br___t infection and is more common in older women (say 50's) I've done research and have found women who just had babies and had symptoms that their Dr's told them was probably a br___t infection from nursing, they gave them antibiotics and sent them home only for these women to come back with no changes to their br___t. That is why this is so deadly, because it can spread pretty fast and it can be months before a Dr. realizes that the antibiotics he's been putting you on has not be working.This is a deadly form of br___t cancer, YOU WILL NOT FEEL A LUMP, the br___t becomes very sore, red and hot to the touch. The skin might look like an orange peel. If you think you might have this the only way to know for sure is to have a biopsy. An ultra sound nor a mammogram will detect this cancer. I had to beg my Dr. to do a biopsy because he kept telling me that women my age don't get this type of cancer. Please type in Inflammatory B--t Cancer in your search engine to read more. It really p___ses me off that we have all been told to check our br___ts on a monthly basis and to look for a lump, only to find out the the most deadliest form of br___t cancer has NO LUMP. Thank you for listening and God Bless.


Mom - November 17

Thanks for sharing that information Kellie. My thoughts and prayers are with you. What is your prognosis?


Kellie - November 17

Not good. The cancer has spread to my brain so they have given me 6 months to a year. It's all because they thought it was an infection and have been treating it with antibiotics for the past year. I continued telling my Dr. that it had to be something else when I went in again there were some interns in the room and one of the interns had mentioned Inflammatory Breast Cancer but the Dr. laughed it off saying I was to young (I'm the youngest patient this hospital has seen). When I was leaving that same intern tracked me down and gave me the number to a surgeon who got me in the very next day and within two days gave me the news. I have since been to my original Dr. with the test result and told him that he didn't help me but the next person he sees with this at least he would be more educated.


Maggie - November 17

Kellie, my heart is breaking for you. You are so strong to come on this forum and educate the rest of us while living it yourself. I'm an RN, and didn't even know about this form of b___st cancer. I hope and pray for you that somehow you will pull through. I promise I will be attentive to any woman that comes to my ER with these symptoms. Have you had any other symptoms you would be willing to share with us? God Bless you and your baby, and I hope that you can remain strong. I'll keep checking this post if you need some support.


To Maggie - November 17

Thank you for your support. Please type in Inflammatory Breast Cancer in your search engine it will give you pictures of what it would look like. The only symptoms I had where redness above my areola, it was very painfull to the touch and the skin looks like an orange peel. Please if you are an RN please look at the picture so you know what to look for. I will keep you informed. Thank you.


Kaeli - November 18

Kellie- Thank you so much for sharing the information with us. I have looked at some websites about this and wouldnt wish this upon my worst enemy. I emailed a few articles to some friends to help educate others, hopefully they will forward it on to even more people. Knowledge is power! My thoughts are with you and hope that things work out for the best. And as Maggie has said, you can always come here if you need some support.


Maggie - November 18

Hi Kellie, how are you today? I looked at some websites and printed up the pics you were telling me about. I'm going to post them up in the ER. It really makes me wonder how many women have been written off as having Mast_tis, and in reality have IBC. I will also run the pics over to the labor and delivery dept as well. I think that with the knowledge of this cancer it should be mandatory that any women presenting with Mast_tis should be given a biopsy.


To Maggie - November 18

You're an Angel. That is what I was hoping would come out of this. The more women know the better. Thank you so much for all of your support.



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