Any Experience With Febrile Seizures Or Epilepsy

8 Replies
in the woods - May 10

Have your kids had febrile seizures? How often and did they outgrow them? Have you had experience with non-febrile seizures, or epilepsy? With absent seizures? My son has had 2 seizures, first at 16 months, and then almost 2 years later, at 3 years 3 months. The first one was considered an atypical febrile seizure, and we were warned that they tend to happen to 4 - 6 years of age, and then they would disappear. So at 3 he was still in that age bracket, but again it was atypical - both of them were lasting too long for a seizure, 45 min, and it seems they would have been damaging if he wasn't helped. Both times it was an emergency visit to a local hospital, and then a helicopter flight to a major children hospital. In between, he infrequently has "absent seizures", that is, he would be spacey and unresponsive for 10-20 seconds. They are so infrequent (sometimes 1 month, sometimes 5-8 months in between), that there is no abnormality in his brain scans (EEG) and other scans (CT, MRI). Neurologists are not labelling him with any diagnosis yet - otherwise he's a healthy vibrant boy. I was just wondering if someone has had experiences, and if kids outgrew that. Genetically, we didn't have history of epilepsy on both sides.

 

bubbasmom - May 10

Hi in the woods. I think you son's case is more severe than my sons, so I don't know how much help I will be. But, my son had a febrile seizure at 7 weeks and then again around 4 months or so. He hasn't had any since but I know they could occur. I don't know about the absent seizures though. The normal eeg and other scans is promising. Good luck

 

in the woods - May 10

bubbasmom, how long the seizures lasted? Did he come out of them on his own?

 

in the woods - May 10

Also, I was thinking, maybe his physical development is too fast so that dizziness occur (you know, just like it happens with teenagers, when brain can't catch up with the fast growing). He's always been in 95% percentile, and wears size 4-5 clothes now (he's 3y4m old). Sometimes it's weird to see this big boy having a tantrum. In this case, I hope he'll outgrow whatever is happening to him.

 

bubbasmom - May 10

The shaking of the first seizure didn't last very long, maybe 30 seconds but his eyes rolled into the back of his head and he threw up and was unresponsive for a few minutes (maybe 3-4). The shaking of the second seizure again lasted maybe 30 seconds but he was bright red and had blood lips for maybe 15-20 minutes. My son is also big (75-90 percentile) for his age. I hope you get some answers. From talking with a doctor, i was told the eeg can tell if a child has had an epileptic seizure, so hopefully thats not it.

 

in the woods - May 14

Apparently EEG is one of the best tests, but also a finicky one - it may show abnormality when there's none, and vice versa - I've got this from some epilepsy sites (epilepsy dot com is very informative), and epileptic children have seizures from many times a day to many times a week. My gut feeling is that my son is not epileptic, and also - that he had not have enough sleep int the time leading to his last seizure, and his brain had been tired to no end. I am insisting now on daytime naps. He needs about 11 hours of sleep at night and 2 more hours during day. His teachers in pre-school have noticed that he's now energetic, even hyper, playing with other kids, - as opposite to the cranky and lethargic child before. I got sidetracked with my daughter example, she quit daytime napping at about 2.5 years old, so I wasn't too insistent with my son after he turned three. Though I noticed his tiredness, his sharp dips in energy levels, but didn't fight with him for napping. Now it's different. Gosh, it's nice to have my sweet energetic son back.

 

cattac - May 16

my younger sister had her first seizure (that we know of) at age 15. It was pure luck we found out- it happened in the middle of the night. She'd had a friend spending the night with her and they fell asleep downstairs on the oversized sofa while watching TV. Her friend woke up during the night when she was beginning to seize. She tried to wake my sister to go to bed but she would not wake up; she was stiff and then her eyes rolled in the back of her head and she started seizing so she went and got my parents. She was absolutely exhausted the entire day and slept almost the whole day. The drs did not diagnose her with epilepsy and said some people do have a seizure. She had tests done and the EEG was fine. She then went 2 years without having a seizure- my parents thought it was just a "fluke" one time thing....then she proceeded to have 4 grand mal seizures in 2 or 3 months and was then diagnosed with epilepsy around the age of 17 after drs did tests including EEG showing all sorts of funky stuff going on in her brain. The first was when she had just finished taking the SAT in school, the second was at school and the third was on a mission trip in another country. She came and visited me and stayed with us for a week before she had the first one of the 4 seizures. I noticed she would SPACE OUT and actually got mad at her because I felt like she was just ignoring me. Little did I know she was having something like a flashback and they were silent seizures. She was having them fairly often. My mother mentioned her spaciness to the dr and after talking it through the dr said they were definitely seizures. She went on one medicine (I cannot remember the name) and had another grand mal seizure while on it and another EEG showed that her brain (per the dr) was trying to constantly seize so she was slowly weaned off that medicine and put on another and she has not seized since (it's been about a year). Just thought I'd share.

 

cattac - May 16

oh and I will add we have NO family history of seizures or epilepsy.

 

in the woods - May 17

Thank you so much for sharing, cattac. The more one knows, the less frightening it all seems. It maybe that your sister's epilepsy was set off by puberty - that's what I read at least. And it seems that stressful (tiring) events also "helped" to bring on your sister's seizures. So epilepsy can hapen with no family history (though lately my dh started saying that he's been having strange sensations from time to time all his life - not seizures, but kind of deja vu dizzy feelings - so there goes my statement that we haven't had history). Great to hear that the latest medication is helping your sister. With us, it's been 2 months since his second grand mal, and, with lots of attention to rest and sleeping, my son is doing fine so far. I guess it's all wait and see.

 

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